Caregiving, Challenges, Down Syndrome, Special Needs Parenting
Evana Sandusky
For When You Don’t Feel Thankful

My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.

For When You Don’t Feel Thankful
Challenges, Hope, Scripture, Special Needs Parenting
Kara Dedert
When Thankfulness Seems Impossible

Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this? 

When Thankfulness Seems Impossible
Autism, Caregiving, Challenges, Hope, Special Needs Parenting, Spiritual Growth
Sunita Theiss
Discovering What God Already Knew About Me, ...

I first suspected I had ADHD as a teenager, but finding the right professional to take me seriously was much harder than I expected. Previous attempts only ended in frustration and tears.

Discovering What God Already Knew About Me, Through My Children’s Diagnosis
Caregiving, Challenges, Living Life Daily
Jolene Philo
Enjoying the Holidays with a Food Allergy

Enjoying the holidays with a food allergy sounds like an oxymoron doesn’t it? After all, eating together is an integral component of the holiday season. I looked forward to making our traditional holiday foods until I was diagnosed with a dairy allergy in 2012. What was to enjoy about the holidays when the foods associated with it were off limits to me?

Enjoying the Holidays with a Food Allergy
Caregiving, Challenges, Grief, Hope, Special Needs Parenting
John Fela (Felageller)
A New Home

It was a short, ten-minute drive from the hotel to the residential facility. I maintained composure while I navigated the busy public roads, and then residential streets. I had a whole range of emotions racing through my body, mind and spirit as we pulled into the campus. This was not just a pleasure drive or a routine errand, this was a significant milestone in the life of my son and our family.

A New Home

milestones

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Reflections on Graduation Day - Part 1

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Reflections on Graduation Day - Part 1

This was not like any other special event during the school year; this was different, with balloons dangling on strings, hands cradling bouquets of flowers, and an air of excitement that was not like any other day. This was graduation day, for my son’s 8th-grade class.

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Reframing Comparisons in the Season of Milestones, Transitions and Rites of Passage

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Reframing Comparisons in the Season of Milestones, Transitions and Rites of Passage

Throughout the childhood and adolescence of any child there are many different kinds of milestones, transitions and rites of passage, and many changes that come along. For families of children with special needs, these can provide many opportunities for unhealthy comparison, which can sometimes be so difficult and painful.

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Jesus Cares about the Small Things

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Jesus Cares about the Small Things

I could almost hear the voice speaking into my heart. That was weird for me because I can count on one hand the number of times when God has spoken to me that manner. That simple truth—that Jesus cares about the small things—allowed me to comprehend the passage in a new light. And this new perspective can be applied to the very human endeavor of parenting children with special needs and disabilities.

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Choosing How to Spend Our Days

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Choosing How to Spend Our Days

Writer Annie Dillard says, “How we spend our days is how we spend our lives.” Those words may sound cruel to parents caught in the chaos of caregiving. There was a time in my life when I would have hated those words. While it was true that I couldn't decide what filled my hours and days, I could decide how to respond to the challenges our family faced.