Do we really mean it when we ask God to give us a life that matters? Parenting a child with disabilities changes the trajectory of our lives. My daughter’s life has stretched me to see God’s Kingdom purposes differently.
Our annual budgets reflect what we value, whether a family or ministry. Our values are also reflected in our budgeting methodology. Here are some approaches that can help your church build community and foster disability inclusion.
A few years ago, a church leadership network where I am involved spent time in a reflection specific to the disability culture in their churches. The tool we used proved helpful in taking an honest and vision-refining look at things. My prayer is that it spurs some meaningful reflection among leaders and strengthens churches as places of belonging for individuals and families living with disability.
The day we received an official diagnosis explaining our daughter’s struggles, my husband and I cried. Actually, I literally wailed and groaned for at least half an hour. Carly’s diagnosis triggered a heart cry that special needs parents, families and individuals living with disability commonly understand, and can benefit the whole Church.
Parents of children living with disability or complex medical conditions find themselves needing to recruit an army of resources and a robust system of supports. But asking for help can be so painful. An invitation-without-obligation approach to asking for help can offer valuable insight for our situations.
As a writer, blogger and author, I’m well acquainted with the rigors, frustrations and chronic disappointment associated with creating content, getting published, and the awkward process of marketing one’s own material. I am also mom to an adult daughter with complex health and developmental needs. Like other writers and moms of children with disabilities, I’ve fallen prey to negative messages and self-pity. Inspired by Lori Stanley Roeleveld’s strategy, allow me to paraphrase a plan for protecting our hearts, minds and lives from debilitating patterns.
Tis the season when caring ministry leaders and volunteers typically try to do some regrouping. The Bible has generous reassurance for leaders caring for individuals and families affected by special needs. I pray you know the tremendous value of the work you do and find refreshment in God’s truth here!
Prayer ministry can be intimidating when the recipients of our caring are faced with complicated circumstances. But nothing is too complicated for God. Here are some practical tips for effective prayer ministry, for both small groups and your church.
If you listen to disability ministry leaders, surveys and thought leaders these days, you will hear a resounding concern that families impacted by disability, mental health difficulties and other special needs will not be returning to “church as usual” any time soon. I hope churches and pastors are asking what will happen to these families. Here are three things your church can do to bless individuals and families impacted by disability in your congregation to navigate the transition process and feel restored to our church communities.
God uses the Church in important ways to come alongside people He eventually calls to leadership. God often places people in positions of receiving essential encouragement, prayer, support and equipping. In the process, He’s revealing their potential, as well as opportunities to move them into areas of ministry with other families impacted by disability.
Caregivers and families impacted by disability are finding themselves most profoundly moved by the simple things these days. I’ve been wondering what ministry would look and feel like if we all just took a giant step back: back to the days of pie socials, potlucks, card clubs and barn raisings. Here are some ideas that any church or ministry leader can do.
The global pandemic increased society’s awareness about the feelings and implications of being isolated. The question remains, what will be the lasting impact of that new awareness? Lisa Jamieson offers some observations and tips for churches and ministries to deepen connection with special needs families.
Church hallways around the world are still quiet places these days. But that could be changing, as ministry in the season of COVID continues with creativity into the winter of 2021.
Christmas brings a sweet and stirring reminder that God is at the center of family. As the church, we are God’s expression of His extended family. When we look at the manger, we see ourselves as part of Jesus’ family. And all at once, we see Jesus through the years at Christmastime.
As I sat down to share life with fellow special needs parents in this blog, it occurred to me that the best I might offer was a shared prayer for the upcoming holiday season. Perhaps you, too, are thinking out of the box about how to make the most of new and unexpected holiday dynamics. Together let’s pray, Lord, make our homes an instrument of Your peace.
We are living in times ripe for the history books. Most of us have been weighing questions on topics ranging from the effects of isolation to medical vulnerability, racial equity and religious freedoms. Leaders in the disability movement are keenly aware of overlaps and similarities among the issues at hand. I’ve been praying that God would use this season to grow us into more compassionate and courageously engaged people, because we desperately need to start appreciating our uniquenesses and enjoying how interconnected we are.
Families affected by disabilities and other special needs live with a certain amount of chronic stress and uncertainty. Due to the unforeseen challenges of 2020, my typical capacity for coping with pressures is compromised these days. This is true for every family caregiver I know. Here are fourteen faith-anchoring reassurances from Scripture you can offer those who are ready to be reminded of God’s truth.
As caregivers, we’re looking for that sweet spot in the dance of life where the team and the individual are both given space and respect. It’s a place where the nuances of movement between the two and as one are honored. It’s a place where an intimate knowing and connection is made.
Dear leader in a disability-friendly church: I am the parent of a child with special needs who appreciates you so much. I understand this is a complicated season to serve in ministry. May God keep you brave and persistent. I am also praying God will help us all work together in finding solutions that fit our family and our church.
Lisa Jamieson shares a prayer that will resonate with many families. We encourage you to pray this prayer for your family and loved ones.
You may be surprised to know that there can be various obstacles for people with disabilities or mental health concerns, as well as their families, to get prayer support. Here are ideas about how people and churches interested in intercessory prayer can come alongside special needs families with the support of prayer chains, as well as examples of both general and specific prayers that can be used as a guide.
Until God releases us from threats like COVID-19, my family is leaning hard into prayer. In many ways, we’re paraphrasing a very helpful prayer prayed over our daughter from so many years ago. I hope extended families, friends and churches will join us in praying this prayer, too.
Just a handful of weeks into the pandemic quarantine, I was already starting to take stock of lessons God was teaching me. In the course of time and in the newly emerging chaos of rushing back to “normal” life, I’m already struggling to remember, let alone walk out, the lessons I was so certain would not leave me! How about you? During meetings with disability leaders and a recent check-in call with a group of pastors who are navigating ministry in these times, I have heard valuable insights from varied fronts.
It’s Father’s Day this weekend and I have a warning: I’m not going to be buying you a greeting card. I’m learning that my own words are important to you. I want my words to speak loudly to your soul—in positive ways that strengthen your spirit. A Father’s Day tribute from Lisa Jamieson.
Churches are wrestling with how they will return to their traditions with special care for the families in their midst who are impacted by disability. There is a powerful, effective way to answer the question, “How should we handle this?” And the answer is this: just ask us.
Every year on the first Thursday in May, our nation celebrates the National Day of Prayer. Would you and your congregations join me in a week of prayer, asking God to unite us and transform the way we live among people who have disabilities?
As we all have a little more time at home because of Coronavirus, disability ministry leaders may be thinking ahead to summer. While summer brings an opportunity for rest, there are valid concerns for those who may be left out because of seasonal changes. There is a way of cultivating life with each other that protects the consistency of connections and cultivates an ongoing sense of belonging. Here are four questions to consider as your church builds communities of belonging to include people with disabilities.
Every child receiving services in the special education system is required to complete a series of assessments every three years. One question I was asked at least every three years was particularly haunting: Where do you see your daughter working and serving in the community in 5, 10 or 15 years? I have often asked God to give us vision, and I’ve learned that Jesus measures a person’s value and success very differently than the way we do.
Families and individuals affected by disability deserve our respect and prayerful care. Their uniqueness deserves our attention. We need to accept and respond to others as we would like others to respond to us. Here are some ways for churches to cultivate a Christ-like response to special needs families and tricky situations in the worship service.
College Church in Wheaton, Illinois has been “around the block“ in disability ministry for 45 years! The ministry team keeps learning and is more invested than ever. Their story is rich with inspiration for those who are still dreaming about disability ministry or just getting started.
For several years, a part of me dreaded the holiday season. By January 2nd—and sometimes long before that—I was exhausted, depressed and racked with guilt feelings for being self-centered and dragging others down with me. Thankfully, God has provided some tools that are softening the edges of my emotions and keeping me more mentally positive. I’m grateful to be learning about things that give me victory over the shadows.
The bustle of Christmas and the Advent season are felt deeply in the offices of churches and Christian ministries around the world. We are battling to balance productivity with meaningful reflection and the celebration of Jesus’ coming — both within ourselves and among those we serve. In this season that beckons us to find and follow our Savior, people with dementia and intellectual-developmental disabilities have life-transforming things to teach us about discipleship.
There are dozens of things we’ve incorporated into our household, lifestyle and daily rhythms over the years that have helped maximize my “autopilot mode.” Let’s be real. Autopilot is a form of rest when it comes to caregiving. The “efficiency geek” in me seeks out routines and conveniences that allow me to slide through the rigors of caregiving with as much ease as possible. Today, I’m sharing some of the much-appreciated amenities at our house.
After a meeting with our elder board about some missions support, our leadership team had an awakening of sorts. One of the elders said, “We need to understand disabilities better as a church,” and then asked, “How can we educate our people about this and do better together as it relates to our families affected by disability?” Read how one church became intentional about disability ministry and outreach.
Being a special needs parent and serving in disability ministry has changed how I approach relationships. For example, disability teaches me benefits of slowing down, and trusting deeply, including the treasure of trusting God. But I’m also reminded me that serving in disability ministry is much like serving in a mission field. We learn how relationships were meant to be lived.
God has used my blindness to others in so many ways. In my ability as a songwriter, I’m able to describe things in a deeper way than people who can see. I show people trust-in-action as I follow other people’s directions. Most of all, I think I’m able to show people that, despite my being totally blind and using a power wheelchair, there is still joy.
The church in this story has no official disability ministry, no “program.” They try very hard to organically meet the needs of individual families who worship there. This is a church-in-progress. It’s a church family becoming an increasing reflection of Christ; God is growing fruit. They realize there is a lot they don’t know or understand. And they’re excited to learn and grow as a community.
We need friends and churches who will stand with us valuing the inherent worth, dignity and purpose of our loved ones with chronic health concerns, disabilities and aging-related conditions. But we hope to receive respect, grace and unwavering support when our conclusions are drawn.
Lisa interviews Don Meyer, a pioneer in the area of special-needs sibling support. What can the church learn from the successes of the Sibshop model as we serve siblings of all ages in our faith communities?
When the church recognizes and embraces the opportunity to join in the faith journey of a special-needs sibling, there is potential to raise up a Christ-following giant whose glory story has the potential to influence countless lives.
Fostering great communication with the siblings of people with special needs can have far-reaching benefits for them, for their family, for you, and for your entire church.
Our family could not be thriving through the experience of disability without biblically solid teaching about disability and suffering, a tremendously supportive faith community, and access to resources that teach the truth about God’s design.
Empowering young people from special needs families toward a healthy process of self-discovery and a positive relationship with Jesus gives them a solid foundation for the transition to adulthood. It also creates future leaders who will bring extraordinary perspective and passion to the communities where they live and serve.
Let’s give some thought to how we can help write more positive stories for families. As leaders, we model and inspire our church families to get to know one another and move toward each other’s worlds. In so doing, we will find our churches celebrating community that increasingly reflects the heart of Christ.