Caregiving, Challenges, Down Syndrome, Special Needs Parenting
Evana Sandusky
For When You Don’t Feel Thankful

My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.

For When You Don’t Feel Thankful
Challenges, Hope, Scripture, Special Needs Parenting
Kara Dedert
When Thankfulness Seems Impossible

Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this? 

When Thankfulness Seems Impossible
Autism, Caregiving, Challenges, Hope, Special Needs Parenting, Spiritual Growth
Sunita Theiss
Discovering What God Already Knew About Me, ...

I first suspected I had ADHD as a teenager, but finding the right professional to take me seriously was much harder than I expected. Previous attempts only ended in frustration and tears.

Discovering What God Already Knew About Me, Through My Children’s Diagnosis
Caregiving, Challenges, Living Life Daily
Jolene Philo
Enjoying the Holidays with a Food Allergy

Enjoying the holidays with a food allergy sounds like an oxymoron doesn’t it? After all, eating together is an integral component of the holiday season. I looked forward to making our traditional holiday foods until I was diagnosed with a dairy allergy in 2012. What was to enjoy about the holidays when the foods associated with it were off limits to me?

Enjoying the Holidays with a Food Allergy
Caregiving, Challenges, Grief, Hope, Special Needs Parenting
John Fela (Felageller)
A New Home

It was a short, ten-minute drive from the hotel to the residential facility. I maintained composure while I navigated the busy public roads, and then residential streets. I had a whole range of emotions racing through my body, mind and spirit as we pulled into the campus. This was not just a pleasure drive or a routine errand, this was a significant milestone in the life of my son and our family.

A New Home

dignity

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He Turns 40; We Turned the Unexpected Journey Into a Spirit of Adventure!

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He Turns 40; We Turned the Unexpected Journey Into a Spirit of Adventure!

A spirit of adventure has helped us care for Joey, and sustain us these past 40 years, and hopefully into future years. We chose to make the journey an adventure something like this, both from and to these five things.

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When The Doctor Can't Fix Your Child

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When The Doctor Can't Fix Your Child

No one can prepare you for what it’s like to be a witness of the continued struggle in your child, just to survive. There’s no chapter on that in the pregnancy books. There’s no guidebook for how to be a parent of the suffering. Or is there?

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4 Caregiving Lessons Mom Taught Me

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4 Caregiving Lessons Mom Taught Me

In our search for ways to relieve my Mom’s loneliness, I learned four effective strategies. Their effectiveness makes me want to go back to my days as mom to a child with special needs and give them a try with him, too. Since that's not going to happen until somebody works the kinks out of time travel, I'll pass the caregiving lessons on to you.