Caregiving, Challenges, Down Syndrome, Special Needs Parenting
Evana Sandusky
For When You Don’t Feel Thankful

My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.

For When You Don’t Feel Thankful
Challenges, Hope, Scripture, Special Needs Parenting
Kara Dedert
When Thankfulness Seems Impossible

Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this? 

When Thankfulness Seems Impossible
Autism, Caregiving, Challenges, Hope, Special Needs Parenting, Spiritual Growth
Sunita Theiss
Discovering What God Already Knew About Me, ...

I first suspected I had ADHD as a teenager, but finding the right professional to take me seriously was much harder than I expected. Previous attempts only ended in frustration and tears.

Discovering What God Already Knew About Me, Through My Children’s Diagnosis
Caregiving, Challenges, Living Life Daily
Jolene Philo
Enjoying the Holidays with a Food Allergy

Enjoying the holidays with a food allergy sounds like an oxymoron doesn’t it? After all, eating together is an integral component of the holiday season. I looked forward to making our traditional holiday foods until I was diagnosed with a dairy allergy in 2012. What was to enjoy about the holidays when the foods associated with it were off limits to me?

Enjoying the Holidays with a Food Allergy
Caregiving, Challenges, Grief, Hope, Special Needs Parenting
John Fela (Felageller)
A New Home

It was a short, ten-minute drive from the hotel to the residential facility. I maintained composure while I navigated the busy public roads, and then residential streets. I had a whole range of emotions racing through my body, mind and spirit as we pulled into the campus. This was not just a pleasure drive or a routine errand, this was a significant milestone in the life of my son and our family.

A New Home

diagnosis

, , ,

Is That Everything That's Going to Happen?

, , ,
Is That Everything That's Going to Happen?

I stared at the cards, more than a little ashamed by my lack of preparation for our appointment. "I know how the story starts, and I know how it's going to end. But I have no idea about what's happening in the middle." But I know the One who does.

, , , ,

He Turns 40; We Turned the Unexpected Journey Into a Spirit of Adventure!

, , , ,
He Turns 40; We Turned the Unexpected Journey Into a Spirit of Adventure!

A spirit of adventure has helped us care for Joey, and sustain us these past 40 years, and hopefully into future years. We chose to make the journey an adventure something like this, both from and to these five things.

, , , , , , , ,

When You Find Yourself Asking God “Why?”

, , , , , , , ,
When You Find Yourself Asking God “Why?”

After months of pleading these questions and God not giving me an answer, I experienced a crisis of faith that scared me. Was God a good God? Was God even real? If He was, surely He'd be answering my questions and my prayers, right? One day while journaling my struggles, sorrows, complaints and whys, I felt strongly that God was telling me I was asking the wrong question.

, , ,

Diagnosis, A Defining Moment

, , ,
Diagnosis, A Defining Moment

Except for posters on 9/11 saying “We Will Remember,” life has returned to normal for those who were not directly impacted. For those of us with a child impacted by disability, there is another date that is cemented in our minds. We each have our own twin towers moment, that moment when our world came crashing down.