The world might seem to have a lot to offer, but as it applies to the caring of a child or loved one with special needs, it offers us things that won’t make us happy and won’t deliver what we need. The world will always lack authenticity and the act of serving will not be very high on the rung of the ladder, by world standards.
God convicted me. He challenged how much I believed it. What would my and my husband’s actions tell us? Were we believing God for His plan for our son, or were we expecting Him to help with ours? Were we open to the possibility that His plans might be different from what we’ve envisioned?
Did I trust God’s plan for the life of my child with disabilities? Did I trust God’s plan for the life of my child with disabilities during his frequent medical crises as a baby? Did I trust God’s plan for the life of my child with disabilities when he was a young adult? Do I trust his plans now?
When we care for our child(ren) with special needs, it’s self-sacrificing. It is more than a “job” as some might say, it is an undertaking (as one of my friends shared so succinctly with me). Yet some of us have a different level and depth of care. Although our son needs 24/7 attention and care, he can do a good number of things on his own. Cindi Ferrini shares the difference between Self-less and Selfless.
When people find out that I am a pediatric speech-language pathologist and the mother of a child with Down syndrome, I am often asked about the order of these life events. Did my daughter inspire my career or was it a coincidence?
The child was about 12 years old and weighed about that many pounds or a few more. As a young high school aged student, I didn’t know how to relate, respond, or inquire about my friends’ sibling that I was seeing—not meeting—for the first time. I’d known my friend for at least three years, and not once did my friend mention this sibling. It was my first introduction to someone having a family member with special needs.
Except for posters on 9/11 saying “We Will Remember,” life has returned to normal for those who were not directly impacted. For those of us with a child impacted by disability, there is another date that is cemented in our minds. We each have our own twin towers moment, that moment when our world came crashing down.
