I first suspected I had ADHD as a teenager, but finding the right professional to take me seriously was much harder than I expected. Previous attempts only ended in frustration and tears.
Enjoying the holidays with a food allergy sounds like an oxymoron doesn’t it? After all, eating together is an integral component of the holiday season. I looked forward to making our traditional holiday foods until I was diagnosed with a dairy allergy in 2012. What was to enjoy about the holidays when the foods associated with it were off limits to me?
It was a short, ten-minute drive from the hotel to the residential facility. I maintained composure while I navigated the busy public roads, and then residential streets. I had a whole range of emotions racing through my body, mind and spirit as we pulled into the campus. This was not just a pleasure drive or a routine errand, this was a significant milestone in the life of my son and our family.
While Halloween is a fun time of year for many children, it can be a really difficult time for some, including many children with additional/special needs. For them it can be a confusing, anxiety-inducing, or even utterly terrifying time. But it doesn’t have to be like that. If we stop for a moment to think about the things they might find hard and how to put things in place to help them, children with special needs can safely join in the fun, too. So what are some of the things about Halloween that children with additional needs can find hard?
“While we’ve had many years of travel speaking together on marriage, discipleship, and other topics, we are seldom alone and ‘just us’”Joe & Cindi Ferrini write on the struggle of never truly being along as special needs parents, and the importance of making time “just for us.”
While recently listening to an afternoon radio program about “worry,” the woman being interviewed was asked, “I know God says not to worry, but how do we NOT worry?” When we worry, we don’t trust that God can make a way for us. For many of us, we’ve had years to learn this, and are still learning. What’s the key?
My son James has his hair cut about four or five times a year. As long as we keep to a routine, all is fine. Any change would be enormously difficult for him, and therefore for us. The reason I share James’ haircut story is to illustrate that routine and familiarity are fundamentally core to the coping mechanisms of many children and young people with additional needs. And just like the routines followed by special needs families, churches have opportunities to make similar choices regarding children and young people with disabilities in church-based work as well.
The time quarantined with 8 children, including five teenagers and one child with profound special needs, has been intense. Prior to the worldwide pandemic, my husband Ryan and I successfully prioritized self-care. We understand how fragile our mental health can become in stressful circumstances, having each experienced bouts of overwhelm, PTSD, and anxiety. May is Mental Health Awareness month. Here are ten routines we have incorporated to preserve the integrity of our well-being that may be helpful to others as well.
Guest blogger Sarah Lango shares honestly about her anxiety and fear in parenting her daughter with special needs. She writes, “As I wrestled with God on how to handle this anxiety I found myself face to face with some basic Biblical truth. I didn’t trust God with my child.” Do you relate? Read more of their story in today’s post.
Except for posters on 9/11 saying “We Will Remember,” life has returned to normal for those who were not directly impacted. For those of us with a child impacted by disability, there is another date that is cemented in our minds. We each have our own twin towers moment, that moment when our world came crashing down.
