Caregiving, Challenges, Down Syndrome, Special Needs Parenting
Evana Sandusky
For When You Don’t Feel Thankful

My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.

For When You Don’t Feel Thankful
Challenges, Hope, Scripture, Special Needs Parenting
Kara Dedert
When Thankfulness Seems Impossible

Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this? 

When Thankfulness Seems Impossible
Autism, Caregiving, Challenges, Hope, Special Needs Parenting, Spiritual Growth
Sunita Theiss
Discovering What God Already Knew About Me, ...

I first suspected I had ADHD as a teenager, but finding the right professional to take me seriously was much harder than I expected. Previous attempts only ended in frustration and tears.

Discovering What God Already Knew About Me, Through My Children’s Diagnosis
Caregiving, Challenges, Living Life Daily
Jolene Philo
Enjoying the Holidays with a Food Allergy

Enjoying the holidays with a food allergy sounds like an oxymoron doesn’t it? After all, eating together is an integral component of the holiday season. I looked forward to making our traditional holiday foods until I was diagnosed with a dairy allergy in 2012. What was to enjoy about the holidays when the foods associated with it were off limits to me?

Enjoying the Holidays with a Food Allergy
Caregiving, Challenges, Grief, Hope, Special Needs Parenting
John Fela (Felageller)
A New Home

It was a short, ten-minute drive from the hotel to the residential facility. I maintained composure while I navigated the busy public roads, and then residential streets. I had a whole range of emotions racing through my body, mind and spirit as we pulled into the campus. This was not just a pleasure drive or a routine errand, this was a significant milestone in the life of my son and our family.

A New Home

autism

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Haircut, Sir?

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Haircut, Sir?

My son James has his hair cut about four or five times a year. As long as we keep to a routine, all is fine. Any change would be enormously difficult for him, and therefore for us. The reason I share James’ haircut story is to illustrate that routine and familiarity are fundamentally core to the coping mechanisms of many children and young people with additional needs. And just like the routines followed by special needs families, churches have opportunities to make similar choices regarding children and young people with disabilities in church-based work as well.

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When Life Is Not As It Should Be

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When Life Is Not As It Should Be

When life is not as it should be, whether the cause is a global pandemic or a child's diagnosis, we have a choice to make. As our hearts break and our faith is tested, we have to decide to respond from either a short term or long term perspective.

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Finding Light In the Darkness: Refuge for the Weary

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Finding Light In the Darkness: Refuge for the Weary

Sometimes we see our hope clearly in a brightly lit moon and joyfully anticipate the arrival of the sun. Other times, we have to remind our despairing selves that the sun is still there despite clouds or storms that hide it, or distractions like wind and lightning. The sun is still there. And so, we sing. Part 2 of the series, Finding Light in the Darkness.

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Why Additional Needs Parenting Is Like A Poker Game

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Why Additional Needs Parenting Is Like A Poker Game

Whatever your experience with the game of poker, there is a lot about the game that is very much like additional needs parenting.

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Persevering Together To Perfection

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Persevering Together To Perfection

The new device will help my son be more aware of himself, his actions and words, so he can communicate better, conduct himself in socially acceptable ways with others, and as a believer, become more Christ-like. But I'm not off the hook just because I'm a neurotypical person. More than the frustration my son feels with therapies and resources to make his life better, I felt like this tool was a sanctification device that maybe we should all use.