Caregiving, Challenges, Special Needs Parenting, Spiritual Growth
Jolene Philo
The Lessons I Learned while Raising a Child ...

The lessons I learned while raising a child with EA/TEF have been many and varied. That’s to be expected since our son was born in 1982 with esophageal atresia (EA) and a tracheoesophageal fistula (TEF), two conditions that left him unable to swallow and required immediate surgery. Many of the lessons came about as a result of the surgeries and invasive procedures he endured between birth and age 5. Other lessons came later as he became more independent in adolescence and adulthood. I encourage you to use these ten lessons as a springboard for considering what you’ve learned as well.

The Lessons I Learned while Raising a Child with EA/TEF
Caregiving, Challenges, Marriage, Medically Fragile, Special Needs Parenting
Joe and Cindi Ferrini
5 Ways to Keep Your Marriage Strong into the ...

Kingdom Focus is what first comes to mind. Those of us who are married and have someone in our life with special needs for whom we have responsibility (often 24/7 and 365!) know that without focus, we are doomed. AND for those of us who are believers in Jesus, we add to that His Kingdom focus and our part in it.

For us, we have 5 top ways to work on our marriage and keep it strong. There are more, of course, but let’s not get overloaded!

5 Ways to Keep Your Marriage Strong into the New Year!
Autism, Caregiving, Hope, Love, Special Needs Parenting
Sunita Theiss
This Small Change in Communication Taught Me a ...

A few years ago, I made a change in the way I interact with my children. It’s a small practice, but it has profoundly helped our family understand and grasp the truth that God loves and delights in us. Every single day, I tell my kids, “I love being your mom.” This intentional habit has transformed not just my relationship with my children but also how I relate to God.

This Small Change in Communication Taught Me a Big Lesson About God’s Love
Autism, Caregiving, Challenges, Hope, Special Needs Parenting, Spiritual Growth
Sunita Theiss
This Year, We Can Rest in the Sacredness of ...

As the New Year begins, we are often bombarded with messages encouraging us to aim high, make big resolutions, and do more. But as parents—especially those navigating disability—this approach can feel overwhelming. Instead of striving for lofty goals, what if we embraced the sacredness of small steps and new beginnings? What if we allowed ourselves the grace to parent differently—in a way that meets the unique needs of our families and honors the season we’re in? For many families like mine, Sunday mornings don’t look like they “should.” We are navigating multiple invisible disabilities—diagnoses like autism, ADHD, anxiety, and more—and we’ve had to embrace flexibility, creativity, and sometimes just letting things go when things feel too hard

This Year, We Can Rest in the Sacredness of Small Beginnings
Caregiving, Challenges, Medically Fragile, Special Needs Parenting
Jolene Philo
When God Redeemed My Worst Christmas Ever and ...

When God redeemed my worst Christmas ever by using it for good, it came as a big surprise. Most likely because 1982 was the year of my worst Christmas ever, and the using it for good part didn’t come along until December of 2024. 42 years is a long time, which explains my surprise.

When God Redeemed My Worst Christmas Ever and Used It for Good

PTSD

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The Lessons I Learned while Raising a Child with EA/TEF

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The Lessons I Learned while Raising a Child with EA/TEF

The lessons I learned while raising a child with EA/TEF have been many and varied. That’s to be expected since our son was born in 1982 with esophageal atresia (EA) and a tracheoesophageal fistula (TEF), two conditions that left him unable to swallow and required immediate surgery. Many of the lessons came about as a result of the surgeries and invasive procedures he endured between birth and age 5. Other lessons came later as he became more independent in adolescence and adulthood. I encourage you to use these ten lessons as a springboard for considering what you’ve learned as well.

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Things I Want My Child’s Therapists to Know About Families Raising Kids with Disabilities

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Things I Want My Child’s Therapists to Know About Families Raising Kids with Disabilities

In a recent viral social media post, Rachel Olstad expressed what she and many other families with children with disabilities would like to express to those who help care for their children.

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How Can I Make You Feel Safe?

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How Can I Make You Feel Safe?

Our job as caregivers, whatever the age of those in our care, is to make them feel safe. Which is why we should ask the same question every day–How can I make you feel safe?–and observe the words and behaviors of our loved ones, so we can create the secure environment they need.

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Mommy Can’t Right Now: An Open Letter to My Touch-Dependent Child

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Mommy Can’t Right Now: An Open Letter to My Touch-Dependent Child

Joanna French writes an open letter to her youngest child, whose love language is very different than hers, and also causes her emotional distress.

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Ten Ways to Prioritize Mental Health While Quarantined with Special Needs and 8 Kids

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Ten Ways to Prioritize Mental Health While Quarantined with Special Needs and 8 Kids

The time quarantined with 8 children, including five teenagers and one child with profound special needs, has been intense. Prior to the worldwide pandemic, my husband Ryan and I successfully prioritized self-care. We understand how fragile our mental health can become in stressful circumstances, having each experienced bouts of overwhelm, PTSD, and anxiety. May is Mental Health Awareness month. Here are ten routines we have incorporated to preserve the integrity of our well-being that may be helpful to others as well.