Caregiving, Challenges, Down Syndrome, Special Needs Parenting
Evana Sandusky
For When You Don’t Feel Thankful

My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.

For When You Don’t Feel Thankful
Challenges, Hope, Scripture, Special Needs Parenting
Kara Dedert
When Thankfulness Seems Impossible

Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this? 

When Thankfulness Seems Impossible
Autism, Caregiving, Challenges, Hope, Special Needs Parenting, Spiritual Growth
Sunita Theiss
Discovering What God Already Knew About Me, ...

I first suspected I had ADHD as a teenager, but finding the right professional to take me seriously was much harder than I expected. Previous attempts only ended in frustration and tears.

Discovering What God Already Knew About Me, Through My Children’s Diagnosis
Caregiving, Challenges, Living Life Daily
Jolene Philo
Enjoying the Holidays with a Food Allergy

Enjoying the holidays with a food allergy sounds like an oxymoron doesn’t it? After all, eating together is an integral component of the holiday season. I looked forward to making our traditional holiday foods until I was diagnosed with a dairy allergy in 2012. What was to enjoy about the holidays when the foods associated with it were off limits to me?

Enjoying the Holidays with a Food Allergy
Caregiving, Challenges, Grief, Hope, Special Needs Parenting
John Fela (Felageller)
A New Home

It was a short, ten-minute drive from the hotel to the residential facility. I maintained composure while I navigated the busy public roads, and then residential streets. I had a whole range of emotions racing through my body, mind and spirit as we pulled into the campus. This was not just a pleasure drive or a routine errand, this was a significant milestone in the life of my son and our family.

A New Home

therapist

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Things I Want My Child’s Therapists to Know About Families Raising Kids with Disabilities

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Things I Want My Child’s Therapists to Know About Families Raising Kids with Disabilities

In a recent viral social media post, Rachel Olstad expressed what she and many other families with children with disabilities would like to express to those who help care for their children.

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When Christmas Isn't Calm and Family Quilts are Torn

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When Christmas Isn't Calm and Family Quilts are Torn

As I've been meditating on the stress in my own family this Christmas, an image of an old quilt rose up in my mind. It hit me how very quilt-like special needs families can be. We're patched together with several different colors and patterns, and our beautifully vibrant family quilts can get pretty messy, especially at Christmas-time.

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Enlarged in the Waiting: A New Take on Waiting for God to Answer Prayer

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Enlarged in the Waiting: A New Take on Waiting for God to Answer Prayer

My husband and I have been in major waiting mode for the past three months. I am growing impatient, frustrated. Mildly depressed. Dare I say, a little hopeless. But God is using this season to enlarge me. In this waiting time, I need to allow more of God’s Spirit to grow within me.

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The Last Visit to My Son's IEP Conference Room

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The Last Visit to My Son's IEP Conference Room

I stood up slowly, and took in that space one last time, grabbed a couple more pictures and said goodbye to therapists I would see many more times, and other therapists and teachers I’d never see again. I waited as my wife finished some conversations. One last quick time, I reviewed the highlight reel in my head of all these meetings here, but more specifically, the hopes and dreams I brought into this room.