Seasons help us to realize we’re not alone. We might still feel alone but we can see things differently and then change our thinking, and even our responses. We know everyone goes through “stuff” but sometimes we need to recognize it just happens to be our turn. The harder part is that we still have someone we are caring for full time, 24/7 added to the new hard stuff!
For families like mine, with an autistic child and my own ADHD and anxiety, Christmas is rarely “calm” or “bright.” In fact, it is often loud, noisy, and overwhelming. Our children get overwhelmed by the lights and the new items. We, as parents, get overwhelmed by all the mess and noise. There are so many sensory inputs flowing through that you feel like you are in a never-ending vacuum of noise. And, that doesn’t even take into account that I’m operating on just a few hours of sleep after leading multiple Christmas services as a pastor.
Ruth saw a bright future for herself. She didn’t have an exact plan in front of her. But at 18, she vaguely knew what she wanted in the future: a master’s degree, a husband, a job she enjoyed, and children. Emma was on another path altogether. When Emma turned 18, she was already enrolled in a school for students with more significant disabilities.
Zechariah, despite being visited by an angel, doubted what he had been told, and so Gabriel told him that because of this doubt, Zechariah would not be able to speak until his son was born. So, he became unable to speak, and therefore unable to communicate through speech. What did he do? And what does his story teach us about people who cannot communicate by speech, or choose not to, today?
There were young kids, teens, young adults, even his best friend, all playing together, learning and laughing. But, there was no sign of my child. I searching the parking lot where everyone was talking and hanging out with their families; not there either. Here is where most people panic. But, deep down I knew; look with the younger kids. It was there I found him, rolling down the hill, filled with that bold childhood laughter, having the time of his life. No pressure here. No one asking him to make quick decisions he had to worry about in that football game. There was only freedom and joy. I want him to be something he isn’t sometimes, but I’m learning to start finding the thankful in disability.
I am exhausted, moody, yet eager to soak in what could be the last nice day of autumn. I hear Joel’s footsteps quicken and turn to see him approaching at a near-run. He grabs my hand, looks me in the eye, grins, and pulls me forward. I wait for him to drop my hand, as he always does, but instead he squeezes it and swings my arm, his grin widening at my delight. For a moment, it feels so right, his hand a perfect fit in mine.
Like many special needs parents, John Felageller has experienced times when medical or education professionals have treated his perspective on his son with special needs as less important and valuable than theirs. In this third post in his series, John addresses what may be the most difficult experience of all for special needs families: when you have struggles working with children's or special needs ministries. John offers valuable takeaways, including recognizing when you need to give back and serve others who are most in need.
For many special needs kids, they are more comfortable not socializing. I am concerned, as our social distancing and quarantine goes on for months, it will be difficult for many kids to transition back to socializing with more people, besides in the comfort of our own homes. Here are three things you can start now, to help your child not be too anxious or nervous to leave home, once we start getting back to ‘normal.’
In the early days of parenting our son, we couldn't imagine having 20/20 hindsight about our child with special needs. Nearly 38 years after the birth of our beautiful baby boy, hindsight reveals how his special needs diagnosis transformed us from a young, scared, and unsure couple into braver, confident parents. Here are five of the many means God used to complete the transition.
