Caregiving, Challenges, Down Syndrome, Special Needs Parenting
Evana Sandusky
For When You Don’t Feel Thankful

My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.

For When You Don’t Feel Thankful
Challenges, Hope, Scripture, Special Needs Parenting
Kara Dedert
When Thankfulness Seems Impossible

Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this? 

When Thankfulness Seems Impossible
Autism, Caregiving, Challenges, Hope, Special Needs Parenting, Spiritual Growth
Sunita Theiss
Discovering What God Already Knew About Me, ...

I first suspected I had ADHD as a teenager, but finding the right professional to take me seriously was much harder than I expected. Previous attempts only ended in frustration and tears.

Discovering What God Already Knew About Me, Through My Children’s Diagnosis
Caregiving, Challenges, Living Life Daily
Jolene Philo
Enjoying the Holidays with a Food Allergy

Enjoying the holidays with a food allergy sounds like an oxymoron doesn’t it? After all, eating together is an integral component of the holiday season. I looked forward to making our traditional holiday foods until I was diagnosed with a dairy allergy in 2012. What was to enjoy about the holidays when the foods associated with it were off limits to me?

Enjoying the Holidays with a Food Allergy
Caregiving, Challenges, Grief, Hope, Special Needs Parenting
John Fela (Felageller)
A New Home

It was a short, ten-minute drive from the hotel to the residential facility. I maintained composure while I navigated the busy public roads, and then residential streets. I had a whole range of emotions racing through my body, mind and spirit as we pulled into the campus. This was not just a pleasure drive or a routine errand, this was a significant milestone in the life of my son and our family.

A New Home

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I Didn’t Want to Learn Hard Caregiving Lessons, but Now I’m Grateful

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I Didn’t Want to Learn Hard Caregiving Lessons, but Now I’m Grateful

My entire life, literally since I was two years old, has revolved around caregiving. Therefore I assumed I was prepared for the challenges our family faced after my mother was diagnosed with dementia in 2008. That assumption proved correct until January of 2023 when Mom entered hospice care. Over the six months leading to her departure from this earth, advocating for her was all encompassing. I didn’t want, nor did I have time to learn hard caregiving lessons. With each passing day I became more grateful for how they drew and are still drawing me closer to God. And so, I want to share them with you.

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Thanks for That (I Think)

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Thanks for That (I Think)

Whether you have typically developing children or children with special needs, there are others who seem to have an answer for why your child is misbehaving, not talking or walking on time, or a myriad of other developmental or behavioral issues. All along the way, we tried to employ a few simple words and thoughts that helped us get through those “suggestions,” that may help you, too.

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More Than Just A Parent - Part 3

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More Than Just A Parent - Part 3

Like many special needs parents, John Felageller has experienced times when medical or education professionals have treated his perspective on his son with special needs as less important and valuable than theirs. In this third post in his series, John addresses what may be the most difficult experience of all for special needs families: when you have struggles working with children's or special needs ministries. John offers valuable takeaways, including recognizing when you need to give back and serve others who are most in need.