Caregiving, Challenges, Down Syndrome, Special Needs Parenting
Evana Sandusky
For When You Don’t Feel Thankful

My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.

For When You Don’t Feel Thankful
Challenges, Hope, Scripture, Special Needs Parenting
Kara Dedert
When Thankfulness Seems Impossible

Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this? 

When Thankfulness Seems Impossible
Autism, Caregiving, Challenges, Hope, Special Needs Parenting, Spiritual Growth
Sunita Theiss
Discovering What God Already Knew About Me, ...

I first suspected I had ADHD as a teenager, but finding the right professional to take me seriously was much harder than I expected. Previous attempts only ended in frustration and tears.

Discovering What God Already Knew About Me, Through My Children’s Diagnosis
Caregiving, Challenges, Living Life Daily
Jolene Philo
Enjoying the Holidays with a Food Allergy

Enjoying the holidays with a food allergy sounds like an oxymoron doesn’t it? After all, eating together is an integral component of the holiday season. I looked forward to making our traditional holiday foods until I was diagnosed with a dairy allergy in 2012. What was to enjoy about the holidays when the foods associated with it were off limits to me?

Enjoying the Holidays with a Food Allergy
Caregiving, Challenges, Grief, Hope, Special Needs Parenting
John Fela (Felageller)
A New Home

It was a short, ten-minute drive from the hotel to the residential facility. I maintained composure while I navigated the busy public roads, and then residential streets. I had a whole range of emotions racing through my body, mind and spirit as we pulled into the campus. This was not just a pleasure drive or a routine errand, this was a significant milestone in the life of my son and our family.

A New Home

quarantine

, , , , ,

Everything Old is New Again

, , , , ,
Everything Old is New Again

One year after the pandemic began, there is still a great amount of fear and uncertainty involved in our daily lives. Reflecting on 2020, there were so many days and weeks that led me feel completely abandoned by God. So having ‘faith’ in God may seem like shallow words, when one is dealing with intense crisis and pain. But one thing that has helped me have faith is to reflect on those times when God showed up, even when I didn’t expect Him to. I had such an experience recently, where I found myself in a familiar place, having my faith tested very much as it has been in the past.

, , , ,

Now I Am One of You

, , , ,
Now I Am One of You

Last November I had the pleasure of attending the one-man show of a friend, based on the life of Father Damien, who served the leper colony on Molokai, Hawaii. One week later, the day after Thanksgiving, the final words from the play took on new meaning for me, in a way I never saw coming.

, , , , , , ,

Quarantined Life or Contained Life? A Choice In Difficult Times

, , , , , , ,
Quarantined Life or Contained Life? A Choice In Difficult Times

I have been numb with depression lately. Except on those days when I am energized by anger. Some of it has to do with the pandemic and continued quarantine; some of it has to do with family relationships and health challenges. And then a daily meditation popped up, challenging me to choose a contained life.

, , , ,

The Nature Cure

, , , ,
The Nature Cure

For the past three months, stress levels around the world skyrocketed as quarantined families hunkered down at home. How do we cope with the added stress? Over the past few months, I’ve been noticing many more families enjoying the forest. Turns out, a walk in the woods might be the best thing to do to beat back stress.

, , ,

Compassion in the Days of COVID19

, , ,
Compassion in the Days of COVID19

Last month I published a blog regarding strategies for dealing with the COVID-19 quarantine, specifically as a single special needs parent. This month, I would like to focus on one of these strategies in particular, and this is the last of the “Three C’s,” Compassion.