Caregiving, Challenges, Living Life Daily, Hope, Love, Marriage, Special Needs Parenting
Joe and Cindi Ferrini
We're Not Alone

Seasons help us to realize we’re not alone. We might still feel alone but we can see things differently and then change our thinking, and even our responses. We know everyone goes through “stuff” but sometimes we need to recognize it just happens to be our turn. The harder part is that we still have someone we are caring for full time, 24/7 added to the new hard stuff!

We're Not Alone
Autism, Caregiving, Disability Awareness, Hope, Special Needs Parenting
Shannon Blosser
Christmas Doesn’t Have to Be Silent

For families like mine, with an autistic child and my own ADHD and anxiety, Christmas is rarely “calm” or “bright.” In fact, it is often loud, noisy, and overwhelming. Our children get overwhelmed by the lights and the new items. We, as parents, get overwhelmed by all the mess and noise. There are so many sensory inputs flowing through that you feel like you are in a never-ending vacuum of noise. And, that doesn’t even take into account that I’m operating on just a few hours of sleep after leading multiple Christmas services as a pastor.

Christmas Doesn’t Have to Be Silent
Caregiving, Challenges, Down Syndrome, Living Life Daily, Love, Special Needs Parenting
Evana Sandusky
A Tale of 2 Women, Vastly Different But Forever ...

Ruth saw a bright future for herself. She didn’t have an exact plan in front of her. But at 18, she vaguely knew what she wanted in the future: a master’s degree, a husband, a job she enjoyed, and children. Emma was on another path altogether. When Emma turned 18, she was already enrolled in a school for students with more significant disabilities.

A Tale of 2 Women, Vastly Different But Forever Tied Together
Autism, Challenges, Special Needs Parenting, Scripture, Non-Speaking Communicatio
Mark Arnold
Zechariah’s story: Lessons about non-speaking ...

Zechariah, despite being visited by an angel, doubted what he had been told, and so Gabriel told him that because of this doubt, Zechariah would not be able to speak until his son was born. So, he became unable to speak, and therefore unable to communicate through speech. What did he do? And what does his story teach us about people who cannot communicate by speech, or choose not to, today?

Zechariah’s story: Lessons about non-speaking communication
Caregiving, Special Needs Parenting
Stephanie McKeever
Finding Thankfulness in Disability

There were young kids, teens, young adults, even his best friend, all playing together, learning and laughing. But, there was no sign of my child. I searching the parking lot where everyone was talking and hanging out with their families; not there either. Here is where most people panic. But, deep down I knew; look with the younger kids. It was there I found him, rolling down the hill, filled with that bold childhood laughter, having the time of his life. No pressure here. No one asking him to make quick decisions he had to worry about in that football game. There was only freedom and joy. I want him to be something he isn’t sometimes, but I’m learning to start finding the thankful in disability.

Finding Thankfulness in Disability

chiari malformation

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More Than Just A Parent - Part 2

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More Than Just A Parent - Part 2

Whether at the doctor’s office, with our child’s therapy team, in the classroom for an IEP meeting, many times we are just not considered experts on our children. We are relegated to being just a bystander while the real “experts” make proclamations over our children. While they may be truthful many times, they still don’t define our children totally. It is in those moments that we must step in and be the voice in the gap between the understanding of the experts and the knowing of our hearts, and speak out the value of our kids that only we can communicate as parents.

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What's the Big Deal About Summer Camp?

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What's the Big Deal About Summer Camp?

I was brought back to the realization that families like mine have all the time. My friend really knows my family and our situation, but he just doesn’t know what family retreat means to us. How could I even begin to explain what really goes on there? I just relegated it to the usual experience of “he doesn’t get it,” but I really wish I could’ve had the “it’s not like that” speech with him.

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The April Only God Could Plan

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The April Only God Could Plan

I had been pondering the High Priestly Prayer since our son was diagnosed with a chiari malformation. I realized that Jesus not only surrendered His physical body so that we might be saved, but He also offered up His glory, His spiritual being for us as well. He literally poured out everything He had, physically, emotionally and spiritually for His children. I shared with my wife how I prayed a similar prayer over our son, that I would surrender everything, every grace, blessing and favor given to me by God so that my son might be healed. It hit me that this is exactly what we celebrate at Easter, a miracle of sacrifice so profound that we can only scratch the surface of how deep it goes. Sunday was coming, and this year we would quite possibly have an Easter miracle just a few days early.