There were young kids, teens, young adults, even his best friend, all playing together, learning and laughing. But, there was no sign of my child. I searching the parking lot where everyone was talking and hanging out with their families; not there either. Here is where most people panic. But, deep down I knew; look with the younger kids. It was there I found him, rolling down the hill, filled with that bold childhood laughter, having the time of his life. No pressure here. No one asking him to make quick decisions he had to worry about in that football game. There was only freedom and joy. I want him to be something he isn’t sometimes, but I’m learning to start finding the thankful in disability.
How many of us counted the cost (both emotionally and financially) of what it would take to raise a child and/or care for an aging parent? Many are doing both…Because we love our child, we don’t often consider the cost because we simply do what is needed and want the best for them.
My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.
Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this?
I hear the music and sway to it with a smile, but do I really feel that way? Do you feel that way? I can honestly say that sometimes the added pressure of buying and wrapping gifts, decorating, sending greetings, baking, and all the rest can be very overwhelming. To help me in this process, I’ve had to put a few things in place that sometimes gets laughs, maybe even ridiculed. Here are a few thing that have helped in my life and for our family.
In scripture, Jesus doesn’t tell us just to be passive prayers, but to be thankful for what God has done and to seek God’s kingdom and righteousness. We’re called not to be worriers, but to be warriors! Taking action spiritually, emotionally and physically can transform our situation, and be of much more help to our child, too.
Holidays can be a very difficult time for families with kids with special needs. Many of the traditions and family gatherings they used to enjoy, they can’t anymore. It can be an especially hard and lonely time, as the difficulties that come with special needs are magnified. Our first attempt was a sorry start to new holiday traditions. However, we persisted. Eleven years later, we have some new special Thanksgiving and Christmas traditions.
