There were young kids, teens, young adults, even his best friend, all playing together, learning and laughing. But, there was no sign of my child. I searching the parking lot where everyone was talking and hanging out with their families; not there either. Here is where most people panic. But, deep down I knew; look with the younger kids. It was there I found him, rolling down the hill, filled with that bold childhood laughter, having the time of his life. No pressure here. No one asking him to make quick decisions he had to worry about in that football game. There was only freedom and joy. I want him to be something he isn’t sometimes, but I’m learning to start finding the thankful in disability.
How many of us counted the cost (both emotionally and financially) of what it would take to raise a child and/or care for an aging parent? Many are doing both…Because we love our child, we don’t often consider the cost because we simply do what is needed and want the best for them.
My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.
Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this?
Special needs parents already live with a lot of stress and anxiety. But when you add in the extra uncertainty that comes with COVID-19 and what’s going on with back-to-school come the fall, well, it’s possible as parents to go into anxiety overload. But there’s a verse in Isaiah that is very encouraging for all parents during this time of uncertainty regarding your child(ren) and our future.
Every August, I get out this story of my son and remind myself that even as the walnut leaves begin to fall, even as I am gripped by the sadness of one kind of letting go or another, it is, in Kairos time, the very first Christmas. When I allow myself to live in the moment, I am in the midst of God's glory.
There are an overabundance of decisions to make in life right now. For many people I know, school decisions are presently giving parents much to ponder. Some parents are admittedly terrified of making the wrong decision for their child. Here are four things that my husband and I do when we are faced with difficult decisions.
Over time, some wonderful things have come about that really do help us in this special needs journey. But while helpful, we also look upon some things we’ve experienced with different thoughts. Sometimes we’ve felt like we were pitied. Other times, we look back and are puzzled. Yet most of all, we are pleased! Let’s walk through our list together!
