Special Needs Parenting

Paperwork, Paperwork, and More Paperwork

Paperwork, Paperwork, and More Paperwork

The nearly 6” of paperwork in a huge binder traveled with me to most every meeting where our son’s special needs were discussed. Here’s why it is important to keep hard copies of all your records.

The Book that Taught Me the Most About Parenting a Child with Down Syndrome

The Book that Taught Me the Most About Parenting a Child with Down Syndrome

I started dreaming the day I found out I was having my first baby. As we made preparations for her birth, I enjoyed reading different pregnancy books. By the time we took Jaycee home from the hospital, I had armfuls of pamphlets, books, and resources on Down syndrome. I read as much as I could to find answers to many questions, and here’s where I found them.

Interruptions, Privacy, and Time Alone

 Interruptions, Privacy, and Time Alone

As a “child forever,” we realize that our adult son isn’t going to consider us in his day to day living. He isn’t going to think, “Oh, Mom and Dad could use a little time together.” To keep from being frustrated, we have found a few things helpful.

When Pain and Joy Intersect

When Pain and Joy Intersect

My son’s birth was filled with happiness, but the previous 48 hours were complete stress. Shortly after my daughter’s stressful birth, my husband turned another year older. Here’s what we have chosen to do when pain and joy have intersected in our parenting life.