Down Syndrome

For When You Don’t Feel Thankful

For When You Don’t Feel Thankful

My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.

Is She Going to Be Okay?: A Parent's Perspective on Down syndrome Awareness Month

Is She Going to Be Okay?: A Parent's Perspective on Down syndrome Awareness Month

I vividly remember the moment the pediatrician gently told my husband and I that our newborn was not the picture of health we envisioned. Just hours after her birth, I was resting in the hospital bed dressed in a stylish oversized gown. I was counting down the hours until we were discharged with only normal, first-time parent worries crossing my mind. Then, everything changed.

The Hope in Asking When

The Hope in Asking When

“My daughter has changed so much in this area during her 18 years of life. It’s progress, and it’s a small thing that I appreciate as her mother now. During those years when it didn’t go well, they were hard. Haircuts haven’t been the only area of growth. I recall being completely anxious every time I left the house with my daughter alone as she would run off and not respond to my pleas to stop. The running off and the anxiousness eventually stopped, but life was hard until then.” Evana Sandusky

Activating Adulthood

Activating Adulthood

Age 18 seemed so far away for so long for my firstborn. Yet, a few months ago my daughter blew out 18 candles on her birthday cake. The banner behind her declared her 18th birthday as well, in case I needed another reminder. This birthday marked her change from childhood to adulthood.

Seasons of Growth

Seasons of Growth

Over the years, I have been through multiple seasons of planting and harvesting skills with my daughter. My daughter is now entering adulthood with disabilities. There are still skills that she needs to develop to make her life easier. The learning does not stop as she ages, however, the pressure I put on myself all of those years is gone. I don’t need to fix issues. I simply need to support her through them. Evana Sandusky writes on her daughter’s growth through the years and likens it to planting seeds and yielding the harvest.