Caregiving, Challenges, Medically Fragile, Special Needs Parenting
Jolene Philo
When God Redeemed My Worst Christmas Ever and ...

When God redeemed my worst Christmas ever by using it for good, it came as a big surprise. Most likely because 1982 was the year of my worst Christmas ever, and the using it for good part didn’t come along until December of 2024. 42 years is a long time, which explains my surprise.

When God Redeemed My Worst Christmas Ever and Used It for Good
Caregiving, Challenges, Living Life Daily, Hope, Love, Marriage, Special Needs Parenting
Joe and Cindi Ferrini
We're Not Alone

Seasons help us to realize we’re not alone. We might still feel alone but we can see things differently and then change our thinking, and even our responses. We know everyone goes through “stuff” but sometimes we need to recognize it just happens to be our turn. The harder part is that we still have someone we are caring for full time, 24/7 added to the new hard stuff!

We're Not Alone
Autism, Caregiving, Disability Awareness, Hope, Special Needs Parenting
Shannon Blosser
Christmas Doesn’t Have to Be Silent

For families like mine, with an autistic child and my own ADHD and anxiety, Christmas is rarely “calm” or “bright.” In fact, it is often loud, noisy, and overwhelming. Our children get overwhelmed by the lights and the new items. We, as parents, get overwhelmed by all the mess and noise. There are so many sensory inputs flowing through that you feel like you are in a never-ending vacuum of noise. And, that doesn’t even take into account that I’m operating on just a few hours of sleep after leading multiple Christmas services as a pastor.

Christmas Doesn’t Have to Be Silent
Caregiving, Challenges, Down Syndrome, Living Life Daily, Love, Special Needs Parenting
Evana Sandusky
A Tale of 2 Women, Vastly Different But Forever ...

Ruth saw a bright future for herself. She didn’t have an exact plan in front of her. But at 18, she vaguely knew what she wanted in the future: a master’s degree, a husband, a job she enjoyed, and children. Emma was on another path altogether. When Emma turned 18, she was already enrolled in a school for students with more significant disabilities.

A Tale of 2 Women, Vastly Different But Forever Tied Together
Autism, Challenges, Special Needs Parenting, Scripture, Non-Speaking Communicatio
Mark Arnold
Zechariah’s story: Lessons about non-speaking ...

Zechariah, despite being visited by an angel, doubted what he had been told, and so Gabriel told him that because of this doubt, Zechariah would not be able to speak until his son was born. So, he became unable to speak, and therefore unable to communicate through speech. What did he do? And what does his story teach us about people who cannot communicate by speech, or choose not to, today?

Zechariah’s story: Lessons about non-speaking communication

Autism

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Post Tenebras Lux Series Finale: Is He Worthy?

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Post Tenebras Lux Series Finale: Is He Worthy?

I began writing this series, Post Tenebras Lux, for the purpose of offering the only thing I have to give those who are weary, grieving, and hopeless, including myself: hope. I have learned that when someone is processing through grief and trials, it is good to let them say whatever it is they need to say without offering immediate answers. This song feels very much like a therapeutic biblical counseling session, where the celebrant is asking the congregation questions of how they feel and what they desire.

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Now the Work of Christmas Begins

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Now the Work of Christmas Begins

As I reflected on Howard Thurman’s poem over the past several days, the proverbial light bulb suddenly switched on in a brain that's been dimmed by the too-muchness of Christmas. The "work of Christmas" of which the poet speaks is what we do every day as we parent children (and adult children) with disabilities.

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An Invitation to Those Who Have Stopped Praying

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An Invitation to Those Who Have Stopped Praying

In the last decade, since my son’s autism diagnosis, my prayer life has changed. After so many nights of asking for sleep and not getting it, after praying for help and not getting it, I find myself only asking for safe requests. I don’t want to demand what He isn’t willing to give. I don’t want to be disappointed. My prayers have gotten so safe, I wonder if they are even worth praying. Then God led me to a passage that reminded me He cares what’s truly on my heart and mind.

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Special Needs Worriers or Warriors?

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Special Needs Worriers or Warriors?

In scripture, Jesus doesn’t tell us just to be passive prayers, but to be thankful for what God has done and to seek God’s kingdom and righteousness. We’re called not to be worriers, but to be warriors! Taking action spiritually, emotionally and physically can transform our situation, and be of much more help to our child, too. 

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Making New Holiday Traditions

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Making New Holiday Traditions

Holidays can be a very difficult time for families with kids with special needs. Many of the traditions and family gatherings they used to enjoy, they can’t anymore. It can be an especially hard and lonely time, as the difficulties that come with special needs are magnified. Our first attempt was a sorry start to new holiday traditions. However, we persisted. Eleven years later, we have some new special Thanksgiving and Christmas traditions.