There were young kids, teens, young adults, even his best friend, all playing together, learning and laughing. But, there was no sign of my child. I searching the parking lot where everyone was talking and hanging out with their families; not there either. Here is where most people panic. But, deep down I knew; look with the younger kids. It was there I found him, rolling down the hill, filled with that bold childhood laughter, having the time of his life. No pressure here. No one asking him to make quick decisions he had to worry about in that football game. There was only freedom and joy. I want him to be something he isn’t sometimes, but I’m learning to start finding the thankful in disability.
How many of us counted the cost (both emotionally and financially) of what it would take to raise a child and/or care for an aging parent? Many are doing both…Because we love our child, we don’t often consider the cost because we simply do what is needed and want the best for them.
My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.
Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this?
Jaycee is a person with Down syndrome. Not everyone with this diagnosis will be exactly like her. For World Down syndrome Day, I encourage you to get to know those around you who have Down syndrome. You may be missing out on an opportunity to meet a person who can enrich your life with friendship and love.
If my experience of raising a child with special needs is anything like yours, empowering my kid with disabilities rarely reached the top of my parenting priority list. In part one of this five-part series, Jolene explores how to empower kids with disabilities by using William Glasser's Choice Theory.
Even though our celebration of Valentine’s Day has passed, there are things we can do every day to show we love each other and care for one another. It is a choice, but it takes work. Being a caregiver for our loved ones with special needs can put a lot of pressure on our marriage. Joe and Cindi Ferrini share 10 tips to strengthen your marriage.
We were supposed to introduce ourselves to the other moms at our round table by saying our names and three quick facts about ourselves. When it was my turn, I said, "My name is Jenn, and I have two boys, and I am a special needs mom and...um..."I froze. My life revolved around the needs and endless appointments of my kids. I could not think of a single “other thing“ to say about me.
