There were young kids, teens, young adults, even his best friend, all playing together, learning and laughing. But, there was no sign of my child. I searching the parking lot where everyone was talking and hanging out with their families; not there either. Here is where most people panic. But, deep down I knew; look with the younger kids. It was there I found him, rolling down the hill, filled with that bold childhood laughter, having the time of his life. No pressure here. No one asking him to make quick decisions he had to worry about in that football game. There was only freedom and joy. I want him to be something he isn’t sometimes, but I’m learning to start finding the thankful in disability.
How many of us counted the cost (both emotionally and financially) of what it would take to raise a child and/or care for an aging parent? Many are doing both…Because we love our child, we don’t often consider the cost because we simply do what is needed and want the best for them.
My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.
Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this?
There have been many moments over these 19 years of special needs parenting where my faith hit the same wall. "It's too late, science has spoken" is a lie from Satan. This lie is a big deal because of all of the many miracles recorded in the Bible: the "it's too late" story line shows up over and over again! Come re-visit the story of Christ’s birth, because it is no accident that more than one “medical miracle” occurred for His arrival on earth.
Our first Christmas away from home was a gift wrapped in our son's special needs. It was not the first Christmas away from home I would have chosen. But it was the gift we were given. It was and is one of the most valuable, precious gifts we have ever received. If your child's special needs are shaping the holiday into something different than what you expected, take heart.
As I've been meditating on the stress in my own family this Christmas, an image of an old quilt rose up in my mind. It hit me how very quilt-like special needs families can be. We're patched together with several different colors and patterns, and our beautifully vibrant family quilts can get pretty messy, especially at Christmas-time.
I hear the music and sway to it with a smile, but do I really feel that way? Do you feel that way? I can honestly say that sometimes the added pressure of buying and wrapping gifts, decorating, sending greetings, baking, and all the rest can be very overwhelming. To help me in this process, I’ve had to put a few things in place that sometimes gets laughs, maybe even ridiculed. Here are a few thing that have helped in my life and for our family.
