There were young kids, teens, young adults, even his best friend, all playing together, learning and laughing. But, there was no sign of my child. I searching the parking lot where everyone was talking and hanging out with their families; not there either. Here is where most people panic. But, deep down I knew; look with the younger kids. It was there I found him, rolling down the hill, filled with that bold childhood laughter, having the time of his life. No pressure here. No one asking him to make quick decisions he had to worry about in that football game. There was only freedom and joy. I want him to be something he isn’t sometimes, but I’m learning to start finding the thankful in disability.
How many of us counted the cost (both emotionally and financially) of what it would take to raise a child and/or care for an aging parent? Many are doing both…Because we love our child, we don’t often consider the cost because we simply do what is needed and want the best for them.
My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.
Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this?
My family sits near the back of the sanctuary in the church. I feel safe in the back, where we might blend in and not disturb anyone. I find myself so worried about my daughter and the people around us that I tune out the sermon altogether. Ironically, I am in church fretting over something like this. I have to trust that the people in our congregation will have grace for my family.
Assistive communication technology was a big help for our son through school and his past 15-year work experience. Having limited speech until he was 12, our now 41-year-old son has found that sign language and this simple technology have aided him in better expressing himself. Each individual affected by special needs has various and different needs, abilities, and disabilities. By getting creative, you can tailor solutions specifically for your child to help them express their needs.
Special needs may put a particular challenge on travel, depending on our child’s needs. While there are places many of us can take our kids, there is the realization that sometimes we might have to say no to a lot of things we wish we could do. For those who can’t travel with your child or loved one with special needs (for whatever reason), I have another idea. The possibilities are endless if you begin to think outside the travel box.
