Caregiving, Challenges, Medically Fragile, Special Needs Parenting
Jolene Philo
When God Redeemed My Worst Christmas Ever and ...

When God redeemed my worst Christmas ever by using it for good, it came as a big surprise. Most likely because 1982 was the year of my worst Christmas ever, and the using it for good part didn’t come along until December of 2024. 42 years is a long time, which explains my surprise.

When God Redeemed My Worst Christmas Ever and Used It for Good
Caregiving, Challenges, Living Life Daily, Hope, Love, Marriage, Special Needs Parenting
Joe and Cindi Ferrini
We're Not Alone

Seasons help us to realize we’re not alone. We might still feel alone but we can see things differently and then change our thinking, and even our responses. We know everyone goes through “stuff” but sometimes we need to recognize it just happens to be our turn. The harder part is that we still have someone we are caring for full time, 24/7 added to the new hard stuff!

We're Not Alone
Autism, Caregiving, Disability Awareness, Hope, Special Needs Parenting
Shannon Blosser
Christmas Doesn’t Have to Be Silent

For families like mine, with an autistic child and my own ADHD and anxiety, Christmas is rarely “calm” or “bright.” In fact, it is often loud, noisy, and overwhelming. Our children get overwhelmed by the lights and the new items. We, as parents, get overwhelmed by all the mess and noise. There are so many sensory inputs flowing through that you feel like you are in a never-ending vacuum of noise. And, that doesn’t even take into account that I’m operating on just a few hours of sleep after leading multiple Christmas services as a pastor.

Christmas Doesn’t Have to Be Silent
Caregiving, Challenges, Down Syndrome, Living Life Daily, Love, Special Needs Parenting
Evana Sandusky
A Tale of 2 Women, Vastly Different But Forever ...

Ruth saw a bright future for herself. She didn’t have an exact plan in front of her. But at 18, she vaguely knew what she wanted in the future: a master’s degree, a husband, a job she enjoyed, and children. Emma was on another path altogether. When Emma turned 18, she was already enrolled in a school for students with more significant disabilities.

A Tale of 2 Women, Vastly Different But Forever Tied Together
Autism, Challenges, Special Needs Parenting, Scripture, Non-Speaking Communicatio
Mark Arnold
Zechariah’s story: Lessons about non-speaking ...

Zechariah, despite being visited by an angel, doubted what he had been told, and so Gabriel told him that because of this doubt, Zechariah would not be able to speak until his son was born. So, he became unable to speak, and therefore unable to communicate through speech. What did he do? And what does his story teach us about people who cannot communicate by speech, or choose not to, today?

Zechariah’s story: Lessons about non-speaking communication

Down Syndrome

, ,

What I Value Most in My Child with Down Syndrome

, ,
What I Value Most in My Child with Down Syndrome

My daughter is many things to different people. Her Down syndrome says something to most people even when they don’t know her. But to me, there’s one attribute that best describes my daughter. She is the most loving person I know.

, , , , , , , , , ,

Three Truths for CHD Awareness Day

, , , , , , , , , ,
Three Truths for CHD Awareness Day

February 14 is the date to celebrate love in the hearts of two people, and it’s also Congenital Heart Defect Awareness Day. Initially, our daughter’s heart diagnoses came as a shock. My husband and I didn’t know how to process the diagnoses and the treatments. Years have passed, and we now have a healthier perspective. Today, I share three truths I discovered as a mom of a child with a CHD.

, , , ,

Things I Need to Lose in the New Year

, , , ,
Things I Need to Lose in the New Year

There are some things in life we need to lose in order to gain in other areas. When parenting a child with special and medical needs, it becomes vitally important to reflect on how we are living, areas we need to improve, and discover ways to better ourselves.

, ,

The Gift My Son Gives To His Sister

, ,
The Gift My Son Gives To His Sister

Jaycee’s Down Syndrome and medical conditions have influenced the relationship between her and my son. While Elijah is younger, he often acts like an older brother. He looks out for her even though she is bigger in size. They understand each other, even with her limited speech. So I wasn’t surprised by my son’s recent choice of a Christmas gift.