Caregiving, Challenges, Living Life Daily, Love, Special Needs Parenting
Cindi Ferrini
Counting the Cost

How many of us counted the cost (both emotionally and financially) of what it would take to raise a child and/or care for an aging parent? Many are doing both…Because we love our child, we don’t often consider the cost because we simply do what is needed and want the best for them.

Counting the Cost
Caregiving, Challenges, Down Syndrome, Special Needs Parenting
Evana Sandusky
For When You Don’t Feel Thankful

My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.

For When You Don’t Feel Thankful
Challenges, Hope, Scripture, Special Needs Parenting
Kara Dedert
When Thankfulness Seems Impossible

Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this? 

When Thankfulness Seems Impossible
Autism, Caregiving, Challenges, Hope, Special Needs Parenting, Spiritual Growth
Sunita Theiss
Discovering What God Already Knew About Me, ...

I first suspected I had ADHD as a teenager, but finding the right professional to take me seriously was much harder than I expected. Previous attempts only ended in frustration and tears.

Discovering What God Already Knew About Me, Through My Children’s Diagnosis
Caregiving, Challenges, Living Life Daily
Jolene Philo
Enjoying the Holidays with a Food Allergy

Enjoying the holidays with a food allergy sounds like an oxymoron doesn’t it? After all, eating together is an integral component of the holiday season. I looked forward to making our traditional holiday foods until I was diagnosed with a dairy allergy in 2012. What was to enjoy about the holidays when the foods associated with it were off limits to me?

Enjoying the Holidays with a Food Allergy

Grief

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What Makes Me Cry as a Caregiver?

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What Makes Me Cry as a Caregiver?

What makes me cry as a caregiver is a list that keeps getting longer. Think of it as reverse bucket list. But really, what makes me cry as a caregiver can be boiled down to two interconnected truths.

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Reframing Comparisons in the Season of Milestones, Transitions and Rites of Passage

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Reframing Comparisons in the Season of Milestones, Transitions and Rites of Passage

Throughout the childhood and adolescence of any child there are many different kinds of milestones, transitions and rites of passage, and many changes that come along. For families of children with special needs, these can provide many opportunities for unhealthy comparison, which can sometimes be so difficult and painful.

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Now I Am One of You

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Now I Am One of You

Last November I had the pleasure of attending the one-man show of a friend, based on the life of Father Damien, who served the leper colony on Molokai, Hawaii. One week later, the day after Thanksgiving, the final words from the play took on new meaning for me, in a way I never saw coming.

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Soaking Up a Golden Moment of Joy

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Soaking Up a Golden Moment of Joy

I am exhausted, moody, yet eager to soak in what could be the last nice day of autumn. I hear Joel’s footsteps quicken and turn to see him approaching at a near-run. He grabs my hand, looks me in the eye, grins, and pulls me forward. I wait for him to drop my hand, as he always does, but instead he squeezes it and swings my arm, his grin widening at my delight. For a moment, it feels so right, his hand a perfect fit in mine.