There were young kids, teens, young adults, even his best friend, all playing together, learning and laughing. But, there was no sign of my child. I searching the parking lot where everyone was talking and hanging out with their families; not there either. Here is where most people panic. But, deep down I knew; look with the younger kids. It was there I found him, rolling down the hill, filled with that bold childhood laughter, having the time of his life. No pressure here. No one asking him to make quick decisions he had to worry about in that football game. There was only freedom and joy. I want him to be something he isn’t sometimes, but I’m learning to start finding the thankful in disability.
How many of us counted the cost (both emotionally and financially) of what it would take to raise a child and/or care for an aging parent? Many are doing both…Because we love our child, we don’t often consider the cost because we simply do what is needed and want the best for them.
My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.
Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this?
There are a lot of logistical challenges to be found within this “shelter in place” world. But special needs kids who are home from school and out of their regular routine face more than challenges; they face real, significant loss in skills and abilities. As I contemplated how we would ever be able to make up for the lost time, I remembered a similar story in the Bible, and an amazing promise from God.
I had just dropped off my son after having him for the weekend, as it was my time with him, according to the parenting agreement with my ex-wife. I no sooner put the car in reverse than I heard the declaration on the radio during a COVID-19 briefing that all restaurants, cafes and bars were to be closed indefinitely. Children like mine don’t just “do better” with routines and structure, they require it. I want to share some ideas and perspective on this time as a new single parent of an autistic child and how I, and more importantly, we as a family still, are coping.
