Medically Fragile

When Pain and Joy Intersect

When Pain and Joy Intersect

My son’s birth was filled with happiness, but the previous 48 hours were complete stress. Shortly after my daughter’s stressful birth, my husband turned another year older. Here’s what we have chosen to do when pain and joy have intersected in our parenting life.

Six Caregiving Advocacy Tips I'm Learning All Over Again

Six Caregiving Advocacy Tips I'm Learning All Over Again

The six caregiving advocacy tips I’m learning all over again come with compliments from my mom. She’s experienced some health challenges over the past few months, so my siblings and I are advocating on her behalf. During my years as caregiver for my young son with chronic medical needs, my husband and I gradually discovered six caregiving advocacy tips that work in any caregiving situation.

Uncertainty and Lack of Control: What's a Caregiver to Do?

Uncertainty and Lack of Control: What's a Caregiver to Do?

If uncertainty and lack of control—whether as a caregiver or for a completely different reason—are sending you reeling, sit for a minute. Take some deep breaths and ask yourself a question.

Celebrating Fifteen Years with Down Syndrome

Celebrating Fifteen Years with Down Syndrome

All life is God-given and is to be celebrated. There was a time long ago that I lost sight of this perspective. God patiently waited for me to look past the words of a diagnosis to see my daughter for who she was created to be. On this World Down Syndrome Day, I appreciate all the time I have spent raising my child with Down syndrome.

Four Signs That I'm On The Struggle Bus

Four Signs That I'm On The Struggle Bus

I am no stranger to struggles as someone raising a child with special and medical needs. It is easy for me to downplay the degree to which I am mentally struggling. But I now see that when I claim to be fine when reality suggests otherwise, that’s an unhealthy denial. Here are four signs that my struggles are not “fine,” and some things that have been helpful for me, when I acknowledge these symptoms.