There were young kids, teens, young adults, even his best friend, all playing together, learning and laughing. But, there was no sign of my child. I searching the parking lot where everyone was talking and hanging out with their families; not there either. Here is where most people panic. But, deep down I knew; look with the younger kids. It was there I found him, rolling down the hill, filled with that bold childhood laughter, having the time of his life. No pressure here. No one asking him to make quick decisions he had to worry about in that football game. There was only freedom and joy. I want him to be something he isn’t sometimes, but I’m learning to start finding the thankful in disability.
How many of us counted the cost (both emotionally and financially) of what it would take to raise a child and/or care for an aging parent? Many are doing both…Because we love our child, we don’t often consider the cost because we simply do what is needed and want the best for them.
My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.
Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this?
The emotions I felt at this point were profound, as this wasn’t just another service on another Christmas; this was me and my son, once again in a new church community, strangers in a familiar yet unfamiliar place, trying to find our place. What helped me get through it, what allowed me to get to a place of hope for this new church and my son’s place in it?
I began writing this series, Post Tenebras Lux, for the purpose of offering the only thing I have to give those who are weary, grieving, and hopeless, including myself: hope. I have learned that when someone is processing through grief and trials, it is good to let them say whatever it is they need to say without offering immediate answers. This song feels very much like a therapeutic biblical counseling session, where the celebrant is asking the congregation questions of how they feel and what they desire.
In the early days of parenting our son, we couldn't imagine having 20/20 hindsight about our child with special needs. Nearly 38 years after the birth of our beautiful baby boy, hindsight reveals how his special needs diagnosis transformed us from a young, scared, and unsure couple into braver, confident parents. Here are five of the many means God used to complete the transition.
