Caregiving, Challenges, Down Syndrome, Special Needs Parenting
Evana Sandusky
For When You Don’t Feel Thankful

My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.

For When You Don’t Feel Thankful
Challenges, Hope, Scripture, Special Needs Parenting
Kara Dedert
When Thankfulness Seems Impossible

Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this? 

When Thankfulness Seems Impossible
Autism, Caregiving, Challenges, Hope, Special Needs Parenting, Spiritual Growth
Sunita Theiss
Discovering What God Already Knew About Me, ...

I first suspected I had ADHD as a teenager, but finding the right professional to take me seriously was much harder than I expected. Previous attempts only ended in frustration and tears.

Discovering What God Already Knew About Me, Through My Children’s Diagnosis
Caregiving, Challenges, Living Life Daily
Jolene Philo
Enjoying the Holidays with a Food Allergy

Enjoying the holidays with a food allergy sounds like an oxymoron doesn’t it? After all, eating together is an integral component of the holiday season. I looked forward to making our traditional holiday foods until I was diagnosed with a dairy allergy in 2012. What was to enjoy about the holidays when the foods associated with it were off limits to me?

Enjoying the Holidays with a Food Allergy
Caregiving, Challenges, Grief, Hope, Special Needs Parenting
John Fela (Felageller)
A New Home

It was a short, ten-minute drive from the hotel to the residential facility. I maintained composure while I navigated the busy public roads, and then residential streets. I had a whole range of emotions racing through my body, mind and spirit as we pulled into the campus. This was not just a pleasure drive or a routine errand, this was a significant milestone in the life of my son and our family.

A New Home

victories

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Dealing with My Harshest Critic

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Dealing with My Harshest Critic

I’m doing a bad job, or so I’ve been told. I don’t always juggle my responsibilities well. But as I come to the halfway point in our summer vacation, I want to remember to enjoy this time, and silence my harshest critic.

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Things to be Thankful for as a Special Needs Parent

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Things to be Thankful for as a Special Needs Parent

The special needs parenting journey can be exhausting, full of loneliness, challenges, and struggles. It can be easy to focus on how hard things are. But I find the whole month of November to be the perfect time to reflect on the things that I am thankful for. Once I get started thinking this way, I realize there really are a lot of things to be thankful for.

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Things We Don’t Have to Worry About

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Things We Don’t Have to Worry About

Often, when we talk about our children with special needs, we talk about their limitations, challenges, and the things they have accomplished. It’s always a joy to share the victories in the midst of what is often a lot of work, scheduling, and coordinating a lot of people to help make it happen. But as parents of Joey who is 38, we are also very aware that while we have a lot we need to do with and for him, there are also a lot of things we’ve never had to worry about or be concerned about.