Medically Fragile

How Can I Be Grateful for Disability?

How Can I Be Grateful for Disability?

The question seems ludicrous, even unfeeling when I consider what my father, son, and now my mother experienced due to disability. So how is it, the day after Christmas, that I am grateful for the disabilities that continue to bring sorrow, pain, and loss to our family? Upon reflection, I see the answer in the smiles of my father, my son, and now my mother.

How to Respond to Seasons of Waiting

How to Respond to Seasons of Waiting

Have you ever found yourself in a time of waiting? Maybe it was for test results, a health issue, your loved ones’ diagnosis, a job, marriage, or….? During that time of waiting, how did you respond? We do not always understand why we go through challenges and frustrating times of waiting but what we do have control over is our reaction to this waiting period.

Memories on my Christmas Tree

Memories on my Christmas Tree

Christmas is one of my favorite times of the year. I enjoy decorating our home and setting up the Christmas trees. I love unboxing our ornaments and placing them on the tree. Each ornament displays different aspects of our life as a family over the years.

When the Grief of Disability Caregiving Threatens to Break You

When the Grief of Disability Caregiving Threatens to Break You

When the grief of caregiving pushes you to your breaking point, what can you do? Jolene Philo shares how she is learning to focus on today.

4 Irritating Things I am Thankful for this Year

4 Irritating Things I am Thankful for this Year

Thanksgiving reminds me to be grateful in all seasons of life. Over the years, there have been seasons when I have been overwhelmed and frustrated with the daily medical interventions. God gently reminded me that the very things that sometimes feel irritating are the things I should be grateful to have for my girl.