There were young kids, teens, young adults, even his best friend, all playing together, learning and laughing. But, there was no sign of my child. I searching the parking lot where everyone was talking and hanging out with their families; not there either. Here is where most people panic. But, deep down I knew; look with the younger kids. It was there I found him, rolling down the hill, filled with that bold childhood laughter, having the time of his life. No pressure here. No one asking him to make quick decisions he had to worry about in that football game. There was only freedom and joy. I want him to be something he isn’t sometimes, but I’m learning to start finding the thankful in disability.
How many of us counted the cost (both emotionally and financially) of what it would take to raise a child and/or care for an aging parent? Many are doing both…Because we love our child, we don’t often consider the cost because we simply do what is needed and want the best for them.
My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.
Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this?
Sometimes words flow out of our mouths and we wish we could grab them and take them back. Other times our thoughts come out as words that aren’t really helpful and beneficial. In marriage and in parenting, our words can land hard on little hearts—and our hearts—if we’re not careful. Let’s consider a few ways we can repackage and recycle our words (and thus our actions) into ways that are helpful, beneficial, and life-giving.
February 14 is the date to celebrate love in the hearts of two people, and it’s also Congenital Heart Defect Awareness Day. Initially, our daughter’s heart diagnoses came as a shock. My husband and I didn’t know how to process the diagnoses and the treatments. Years have passed, and we now have a healthier perspective. Today, I share three truths I discovered as a mom of a child with a CHD.
After months of pleading these questions and God not giving me an answer, I experienced a crisis of faith that scared me. Was God a good God? Was God even real? If He was, surely He'd be answering my questions and my prayers, right? One day while journaling my struggles, sorrows, complaints and whys, I felt strongly that God was telling me I was asking the wrong question.
How often do we, as parents of kids with disabilities, crown ourselves King or Queen when it seems obvious that no one else can perform the miracles we pull out of the hat on a daily basis? We crown ourselves indispensable, don’t we? But if Jesus didn’t consider himself indispensable, why should we?
It’s a question many Christian parents of a child with special needs or a disability ask, and it’s a question that can be really hard to answer, especially when the child in question has limited communication. But perhaps there are clues that we can piece together: things that Jesus did, or understanding the ways our child responds to God. In exploring this, it might stretch and grow our own understanding and faith in God, too.
