The world might seem to have a lot to offer, but as it applies to the caring of a child or loved one with special needs, it offers us things that won’t make us happy and won’t deliver what we need. The world will always lack authenticity and the act of serving will not be very high on the rung of the ladder, by world standards.
God convicted me. He challenged how much I believed it. What would my and my husband’s actions tell us? Were we believing God for His plan for our son, or were we expecting Him to help with ours? Were we open to the possibility that His plans might be different from what we’ve envisioned?
Did I trust God’s plan for the life of my child with disabilities? Did I trust God’s plan for the life of my child with disabilities during his frequent medical crises as a baby? Did I trust God’s plan for the life of my child with disabilities when he was a young adult? Do I trust his plans now?
When we care for our child(ren) with special needs, it’s self-sacrificing. It is more than a “job” as some might say, it is an undertaking (as one of my friends shared so succinctly with me). Yet some of us have a different level and depth of care. Although our son needs 24/7 attention and care, he can do a good number of things on his own. Cindi Ferrini shares the difference between Self-less and Selfless.
When people find out that I am a pediatric speech-language pathologist and the mother of a child with Down syndrome, I am often asked about the order of these life events. Did my daughter inspire my career or was it a coincidence?
I’ve come to realize that one of the greatest reasons He sent me out on the road was to teach me lessons through running that apply to the journey of being a special needs parent. Over and over I encounter similarities between the two. Most recently I discovered something that I truly was not expecting. I believe the Lord showed me this about running so that I would apply it to the rest of my life.
February 14 is the date to celebrate love in the hearts of two people, and it’s also Congenital Heart Defect Awareness Day. Initially, our daughter’s heart diagnoses came as a shock. My husband and I didn’t know how to process the diagnoses and the treatments. Years have passed, and we now have a healthier perspective. Today, I share three truths I discovered as a mom of a child with a CHD.
After months of pleading these questions and God not giving me an answer, I experienced a crisis of faith that scared me. Was God a good God? Was God even real? If He was, surely He'd be answering my questions and my prayers, right? One day while journaling my struggles, sorrows, complaints and whys, I felt strongly that God was telling me I was asking the wrong question.
It’s a question many Christian parents of a child with special needs or a disability ask, and it’s a question that can be really hard to answer, especially when the child in question has limited communication. But perhaps there are clues that we can piece together: things that Jesus did, or understanding the ways our child responds to God. In exploring this, it might stretch and grow our own understanding and faith in God, too.
I began writing this series, Post Tenebras Lux, for the purpose of offering the only thing I have to give those who are weary, grieving, and hopeless, including myself: hope. I have learned that when someone is processing through grief and trials, it is good to let them say whatever it is they need to say without offering immediate answers. This song feels very much like a therapeutic biblical counseling session, where the celebrant is asking the congregation questions of how they feel and what they desire.
