by Evana Sandusky | Jan 4, 2023 | Caregiving, Medically Fragile, Special Needs Parenting
As the hours into the trip went along, I felt more and more discouraged.It started with my family of four going on an overnight trip. My daughter with Down syndrome had several specialist appointments in St. Louis over two days. We decided to spend the night in a...
by Jolene Philo | Dec 26, 2022 | Caregiving, Special Needs Parenting, Spiritual Growth
How can I be grateful for disability? The question seems ludicrous, even unfeeling when I consider what my father, son, and now my mother experienced due to disability.So how is it, the day after Christmas, that I am grateful for the disabilities that continue to...
by Evana Sandusky | Dec 5, 2022 | Caregiving, Medically Fragile, Special Needs Parenting
Christmas is one of my favorite times of the year. I enjoy decorating our home and setting up the Christmas trees. I love unboxing our ornaments and placing them on the tree. Each ornament displays different aspects of our life as a family over the...
by Jolene Philo | Nov 28, 2022 | Caregiving, Mental Health, Spiritual Growth
The grief of disability caregiving almost overwhelmed me this autumn.First, my Aunt Donna, an oasis of security and love during my childhood, died. Grief over Donna’s death was accompanied by grief for my mother. She’s the elder sister by six years,...
by Mark Arnold | Nov 4, 2022 | Caregiving, Hope, Special Needs Parenting
Fall (or Autumn for us Brits!) is a fabulous time of the year, with so many changes in the natural world and treasures to look for and find! We’ve been making natural fiddles/fidget boxes. Maybe you would like to make one too? There are loads of wonderful sensory...
by Jolene Philo | Oct 24, 2022 | Caregiving
How to organically enter into life with a caregiving family has been on my mind since September when my dear Aunt Donna died. Since then, memories of how she, her husband Jim, and their four children embraced our family after my dad was diagnosed with multiple...
