by Jolene Philo | Jan 22, 2024 | Rare Diagnosis, Special Needs Parenting, Spiritual Growth
Raising kids with disabilities comes with its own set of challenges and reasons to be grateful. Because this is EA/TEF Awareness Month and our son was born with EA/TEF, my top ten perks of raising a child with disabilities will be slanted in that direction. Years...
by Key Ministry | Nov 29, 2021 | Grief, Rare Diagnosis, Special Needs Parenting
In the past few months some significant changes have happened with Ryan. I have sat down numerous times, started to write and end up deleting it. Needed to give myself time to process through all the feelings and emotions. But before I share the latest updates, I have...
by Key Ministry | Apr 13, 2020 | Coronavirus, Rare Diagnosis, Special Needs Parenting
“And I will restore to you the years that the locust hath eaten…” Joel 2:25aThere are a lot of logistical challenges to be found within this “shelter in place” world. Toilet paper is the first that comes to mind, but there are plenty. Having kids home from...
by Key Ministry | Feb 21, 2020 | Rare Diagnosis, Special Needs Parenting, Spiritual Growth
I’m not sure how seven years can seem like it has gone by in the blink of an eye and lasted an eternity all at the same time, but that’s where I find myself. I’m living in the tension between survival and healing. My life doesn’t look the way I envisioned. My family...
by Evana Sandusky | Feb 14, 2020 | Medically Fragile, Rare Diagnosis, Special Needs Parenting
February 14 is the date to celebrate the love in the hearts of two people. It’s also Congenital Heart Defect Awareness Day. According to the Centers for Disease Control and Prevention, congenital heart defects (CHD) occur in roughly 1 in 100 births in the United...
by Key Ministry | Dec 27, 2019 | Hope, Rare Diagnosis, Special Needs Parenting
My special guy is 19 years old! The transition to adulthood has been an unexpected and challenging journey. It has been such a huge life change that I’ve recently presented parent workshops on “How to Navigate the Transition to Adulthood” at...
