by Key Ministry | Dec 27, 2019 | Hope, Rare Diagnosis, Special Needs Parenting
My special guy is 19 years old! The transition to adulthood has been an unexpected and challenging journey. It has been such a huge life change that I’ve recently presented parent workshops on “How to Navigate the Transition to Adulthood” at...
by Key Ministry | Oct 25, 2019 | Medically Fragile, Rare Diagnosis, Special Needs Parenting
There’s a weight like no other that exists in the world of medically complex kids. You spend your days—and sometimes nights—advocating, transporting, scheduling, and caregiving for this most precious treasure that you call son or daughter. You learn to be master...
by Lisa Jamieson | Aug 6, 2019 | Rare Diagnosis, Special Needs Parenting, Spiritual Growth
I recently read a short memoir about the power of friendship. It got me thinking about how being a special needs parent and serving in disability ministry has changed how I approach relationships. For example, disability teaches me benefits of slowing down. More than...
by Sarah Broady | May 17, 2019 | Autism, Rare Diagnosis, Special Needs Parenting
Stories. It’s the reason why we have libraries and blogs and magazines and newspapers. It’s the sole target of every journalist and news anchor—to get the story, and be the first to report it. Stories are why we are invested in social media: why we scroll...
by John Fela (Felageller) | May 8, 2019 | Hope, Medically Fragile, Rare Diagnosis
I have always loved the month of April, and for lots of good reasons actually. First off, it is my birthday month, the beginning of spring—or fake spring as we Chicagoans like to say, and the month when two very special holidays usually take place. One is Easter of...
by Key Ministry | Sep 14, 2018 | Challenges, Rare Diagnosis
Today is the first time I can say I am thankful for a rare medical condition that I previously endured. I didn’t understand it at the time but now it has great significance. You see, my daughter has now come down with the same unusual condition.In some ways,...
