by Stephanie McKeever | Feb 11, 2025 | Caregiving, Medically Fragile
In honor of Pediatric Cancer Day on February 15th, we are re-posting this blog from Stephanie McKeever You know that floor in your children’s hospital you’ve never seen but wondered what secrets it holds? The one that requires a chaperone for admittance?...
by Jolene Philo | Aug 26, 2024 | Medically Fragile, Special Needs Parenting, Spiritual Growth
Did I trust God’s plan for the life of my child with disabilities?That’s a question I’ve been mulling over since our South Dakota camping vacation ended with a surprising twist. The twist being that my husband Hiram tested positive for Covid two days before we were to...
by Evana Sandusky | Jan 15, 2024 | Medically Fragile, Special Needs Parenting, Spiritual Growth
I went to the office supply store on a mission. I needed to buy my 2024 planners, so I could start filling out the days already booked with appointments. While I was there, I looked for a small pocket calendar to record my daughter’s daily weight. Since July 2023, her...
by Jolene Philo | Aug 27, 2023 | Medically Fragile, Mental Health, Special Needs Parenting
What makes me cry as a caregiver is a list that keeps getting longer. On this, the day before my 65th birthday, I’m writing down everything that makes me cry. Think of it as reverse bucket list. A bucket with a hole that leaks tears out my eyes. Do you have the...
by Evana Sandusky | Aug 13, 2023 | Down syndrome, Medically Fragile, Special Needs Parenting
I remember rubbing my protruding belly as I posed for pictures. My co-workers at the grade school where I worked threw a baby shower for my unborn daughter arriving in 3 weeks. I smiled as I marveled at all the baby gear I was not certain I knew how to use. The pink...
by Jolene Philo | Mar 27, 2023 | Caregiving, Medically Fragile, Special Needs Parenting
Editor note: This is part two of a five-part series written by Jolene Philo. Part one can be found here. Part three will publish in April.Empowering kids with disabilities is essential for their present and future well-being. As mentioned in the first post of this...
