by Evana Sandusky | Aug 13, 2023 | Down syndrome, Medically Fragile, Special Needs Parenting
I remember rubbing my protruding belly as I posed for pictures. My co-workers at the grade school where I worked threw a baby shower for my unborn daughter arriving in 3 weeks. I smiled as I marveled at all the baby gear I was not certain I knew how to use. The pink...
by Evana Sandusky | May 8, 2023 | Caregiving, Down syndrome, Special Needs Parenting
I stand at the closed door of my daughter’s bedroom. First, I listen for the gentle hum of her bi-pap machine. After this many years, I can tell from the sound out in the hallway if the mask is on securely. Secondly, I listen for any sounds that indicate she is still...
by Evana Sandusky | Apr 10, 2023 | Caregiving, Down syndrome, Special Needs Parenting
As soon as I woke up, my body revolted. My hip somehow fell out of place again, making each movement painful. I eased out of bed straight to the bottle of ibuprofen and Icy Hot. In a few hours, I would feel better, but it would be brutal until my muscles loosened...
by Evana Sandusky | Mar 13, 2023 | Down syndrome, Special Needs Parenting
With a simple glance, people may see a typical family when I’m out with my husband and two children. Given a lingering moment, most strangers notice that our family is not like everyone else; something is different.My daughter has Down syndrome, which causes...
by Evana Sandusky | Feb 8, 2023 | Down syndrome, Medically Fragile, Special Needs Parenting
My daughter’s heart has never been normal. That’s a tough sentence to write, but it’s true.Seventeen years ago, I strolled into the NICU for my mid-day visit with my daughter, Jaycee. She was in the middle of her first echocardiogram to examine her heart. I sat...
by Sandra Peoples | Oct 6, 2022 | Book Reviews, Down syndrome, Podcast
In this episode, Sandra interviews Stephanie Hubach to discuss how churches can support all the members of a special-needs family. What challenges do they face, and how can the church provide hope and help for these families? Listen now in your favorite podcast app!...
