by Jolene Philo | Aug 23, 2021 | Caregiving, Special Needs Parenting
“I need a vacation from vacation,” I wanted to say soon after we came home after celebrating my husband’s retirement by traveling for most of July. The aftermath of being gone for so long was substantial:Catching up everything that didn’t get...
by Evana Sandusky | Aug 19, 2019 | Challenges, Medically Fragile, Special Needs Parenting
When my daughter was born with a genetic condition and a heart defect, my family was overcome with support. We were met with the typical newborn baby gifts and greetings. Then support went above and beyond the norm. We received numerous meals, cards of encouragement,...