by Jolene Philo | Mar 25, 2024 | Caregiving, Special Needs Parenting
“How do I teach my kids to interact with people who have disabilities?”The question came during an interview with the hosts of the Music for the Soul podcast. While I composed an answer in my head before speaking, I also thought to myself, “What a great topic for a...
by Evana Sandusky | Mar 20, 2024 | Down syndrome, Special Needs Parenting, Special needs siblings
At age 18, my daughter stands under 5 feet tall. Her brown, wavy hair falls just below her shoulders. Most days, she prefers her hair to be worn up in a ponytail. Her shoe of choice is crocs. With no laces or buckles, they seem to work well for her. She adores the...
by Jenn Soehnlin | Mar 11, 2024 | Scripture, Special Needs Parenting, Spiritual Growth
Have you ever felt like you’re praying for the same things over and over and getting discouraged when it seems God isn’t answering your prayers? I’ve been there. With two children with special needs, I was constantly praying for my sons’ speech, their development,...
by Jolene Philo | Feb 26, 2024 | Caregiving, Special Needs Parenting, Spiritual Growth
When parents of kids with disabilities get ahead of themselves––and let me be clear, I’m speaking from personal experience––here they remind me of Jodi, a kindergarteners I taught long, long ago. She was the daughter of a family friend, and I’d known her since...
by Evana Sandusky | Feb 12, 2024 | Caregiving, Special Needs Parenting, Spiritual Growth
From across our home, I hear her loud, unmistakable giggle. I enter the room to see my daughter rocking in her recliner. She’s smiling and laughing as she looks at nothing in particular. There’s no music or shows playing. There is nothing around to cause the joy she...
by Jolene Philo | Jan 27, 2024 | Special Needs Parenting
The lessons I learned while raising a child with EA/TEF have been many and varied. That’s to be expected since our son was born in 1982 with esophageal atresia (EA) and a tracheoesophageal fistula (TEF), two conditions that left him unable to swallow and required...
