There were young kids, teens, young adults, even his best friend, all playing together, learning and laughing. But, there was no sign of my child. I searching the parking lot where everyone was talking and hanging out with their families; not there either. Here is where most people panic. But, deep down I knew; look with the younger kids. It was there I found him, rolling down the hill, filled with that bold childhood laughter, having the time of his life. No pressure here. No one asking him to make quick decisions he had to worry about in that football game. There was only freedom and joy. I want him to be something he isn’t sometimes, but I’m learning to start finding the thankful in disability.
How many of us counted the cost (both emotionally and financially) of what it would take to raise a child and/or care for an aging parent? Many are doing both…Because we love our child, we don’t often consider the cost because we simply do what is needed and want the best for them.
My daughter arrived in the Intensive Care Unit (ICU) in the middle of the night on the eve of Thanksgiving. A tough respiratory virus attacked her lungs, and she needed a substantial amount of oxygen support. And now, this unexpected illness meant Thanksgiving was going to be completely different than we had all planned.
Are you scrounging for thankfulness this holiday season? Holidays can be a challenge for those walking through hard days. Perhaps you feel like you've been handed the short-end of the stick; your child is struggling, you’re exhausted and it seems like everybody else has life with a bit more gravy. It’s easy to focus on our circumstances, take stock of what we have and where we are and end up feeling completely void of thankfulness. Is there a cure for this?
As I look at my life as a caregiver, I can see the temptation I have toward sinning in four specific ways. And even though it’s much easier not to talk about the uncomfortable topic of sin, Scripture says we can confess our sins to each other (James 5:16). So today I’m confessing to you some of the sins I struggle with in hopes that it will encourage you to look at your own life and see if these patterns are evident in you as well.
I have been numb with depression lately. Except on those days when I am energized by anger. Some of it has to do with the pandemic and continued quarantine; some of it has to do with family relationships and health challenges. And then a daily meditation popped up, challenging me to choose a contained life.
My father, brother, and nephews possess much knowledge to grow soybeans, wheat, and corn, but some vital aspects of farming are out of their control. Similarly, my husband and I plan and plot care and opportunities for our daughter who has developmental disabilities, but there are some things out of our control. We wait, pray, hope, and support our daughter, until the time when we reap what we have sown into her as a child.
We’ve had to adjust a lot of expectations around here this year—and that’s an understatement. I’ve become aware that the COVID-19 adjustments we’ve made these few months have diminished my expectations in a great many areas of my life. But then I got a reminder about praying with expectancy, urgency and boldness.
Like many special needs parents, John Felageller has experienced times when medical or education professionals have treated his perspective on his son with special needs as less important and valuable than theirs. In this third post in his series, John addresses what may be the most difficult experience of all for special needs families: when you have struggles working with children's or special needs ministries. John offers valuable takeaways, including recognizing when you need to give back and serve others who are most in need.
