by Evana Sandusky | Nov 8, 2023 | Caregiving, Special Needs Parenting
Can I have an easy day please?I love the many amenities we have in America. As a mom and wife who is also employed full-time, I enjoy options when the day is busy. I love the ability to pick out my groceries online, and create a click-list for easy pickup. I know when...
by Jolene Philo | Oct 23, 2023 | Caregiving, Mental Health, Special Needs Parenting
The time warp that is disability caregiving is a concept that came to me in the middle of the night. Before you categorize me as a crack pot, be assured of this:The thought was not caused by alien abduction.No zombies came into the bedroom and made a midnight snack of...
by Jolene Philo | Aug 27, 2023 | Medically Fragile, Mental Health, Special Needs Parenting
What makes me cry as a caregiver is a list that keeps getting longer. On this, the day before my 65th birthday, I’m writing down everything that makes me cry. Think of it as reverse bucket list. A bucket with a hole that leaks tears out my eyes. Do you have the...
by Joe and Cindi Ferrini | Aug 21, 2023 | Caregiving, Special Needs Parenting, Spiritual Growth
Do you ever think your everyday spiritual life shows little progress in growing spiritually? When our girls were little, we could see their daily and even moment-to-moment physical development progress and changes, but our now 42- year-old son Joey (who has special...
by Evana Sandusky | Aug 13, 2023 | Down syndrome, Medically Fragile, Special Needs Parenting
I remember rubbing my protruding belly as I posed for pictures. My co-workers at the grade school where I worked threw a baby shower for my unborn daughter arriving in 3 weeks. I smiled as I marveled at all the baby gear I was not certain I knew how to use. The pink...
