Joe and Cindi Ferrini

It’s Just a Fact, Not a Complaint

It’s Just a Fact, Not a Complaint

"It's just a fact, not a complaint." We say that so often. When sharing something that might come across as a compliant in the everyday care of our son (Joey) with special needs, when experiencing a challenging behavior, or relating some hardship that special needs...

read more
I’m Fine

I’m Fine

How often do we say, "I'm fine" when asked “How are you?” We know the answer: all the time. And we know why: It takes much too much effort and emotion at times to say how we really are. Sometimes the care, concerns, and challenges we deal with having a child(ren) with...

read more
Still Life

Still Life

A picture is worth a thousand words, they say. But, some pictures are worth so much more. Our daughter, son-in-law, and sons have opened their hearts and home to foster care. One time they welcomed a “family” of several siblings. We observed each child, while...

read more
School Daze or School Days?

School Daze or School Days?

Getting ready each day for school is one thing for our typically developing children, but often quite another for our children with special needs. And when we say “special needs” we know there is a great spectrum of various degrees in each diagnosis. So trying to sift...

read more
Ability to Bounce Back

Ability to Bounce Back

A parent or caregiver of someone with special needs, needs the ability to bounce back. There was a time we asked each other, “What would it take (not that we want to experience it) for us to hit a breaking point?” We don’t have a list of times we thought we were...

read more
Learning To Love Listening

Learning To Love Listening

Anytime is a good time to learn to listen. These statements are great places to start in the month of “love” as we share cards, gifts, and time with others. It’s a skill that can be learned and we will be all the better for it. In our family, we are still learning and...

read more
It’s Not Just “Us” 

It’s Not Just “Us” 

While we’ve had many years of travel speaking together on marriage, discipleship, and other topics, we are seldom alone and “just us”. Cindi’s sister and now our daughters Kristina and Kathleen and families have and will care for Joey when we have a ministry...

read more
Do We Follow the Word of God or the World?

Do We Follow the Word of God or the World?

The world might seem to have a lot to offer, but as it applies to the caring of a child or loved one with special needs, it offers us things that won’t make us happy and won’t deliver what we need. The world will always lack authenticity and the act of serving will not be very high on the rung of the ladder, by world standards.

read more
Self-LESS vs. Selfish

Self-LESS vs. Selfish

When we care for our child(ren) with special needs, it’s self-sacrificing. It is more than a “job” as some might say, it is an undertaking (as one of my friends shared so succinctly with me). Yet some of us have a different level and depth of care. Although our son needs 24/7 attention and care, he can do a good number of things on his own. Cindi Ferrini shares the difference between Self-less and Selfless.

read more
What to do Even When We Don’t Want To

What to do Even When We Don’t Want To

Watching the news and seeing trials and challenges on many levels we’ve come to understand that until “it” happens to us, it’s often not important. People in leadership (politicians, leaders making rules, business owners running businesses, and parents raising children) will all make decisions that affect others but until it affects them….it won’t always be seen as important or necessary to consider other options of how to engage, care, or help. Cindi Ferrini writes on what do even when we don’t want to…

read more
How Do You Wear Special Needs?

How Do You Wear Special Needs?

Like a new outfit that looks crisp and sharp or an old outfit that is so worn out it’s comfy and we wear it all the time….is often how we wear the banner of the special needs journey. How does it look on us? On you? Is our attire crisp and sharp or rather worn out? Cindi Ferrini writes on how YOU wear special needs and caregiving.

read more
Just Go!

Just Go!

Seeing many of our friends on social media taking trips to Japan, Italy, France, Greece, Egypt, and all around the USA, keeps us ever mindful that our feet are firmly planted in the nation of “caring for special needs”. But what if if several couples take turns getting to know the needs of this family and meeting those needs, so you can make a “WEEKEND TO REMEMBER” happen for them?

read more
Serving with Thanksgiving

Serving with Thanksgiving

Our choosing to serve God must be taken seriously. We will have many opportunities in our everyday dealings to decide who we will serve. We must decide what, or to whom we will choose to serve, and how. We need help to choose His will over our own, because we know that He knows what is best for us. In this, we will have amazing gratitude because of what we’ve learned, how we’ve grown, and how we serve

read more
Do not FRET!?

Do not FRET!?

Oswald Chambers said, “It’s easy to say, ‘Fret not,’ but a very different thing to have such a disposition that you find yourself able not to fret.” In today’s post, Cindi identifies the key that makes a life without fretting possible, even for families with disabilities and special needs.

read more
Need Help? 5 Ways to Know if You Need Therapy

Need Help? 5 Ways to Know if You Need Therapy

Joe and I would like to share some thoughts that might have you thinking, “I could use a little help by going to therapy.”  Whether your marriage is in a tough place, you’re wondering if you’re doing the right things to help your children, or you have a special needs family and are struggling—consider therapy to get life in order. 

read more
11 Self-Care Ideas for Caregivers

11 Self-Care Ideas for Caregivers

Because caregiving can be, and often is, a full-time job, we need to understand that although great satisfaction can come from caring for a loved one, some outcomes can put the caregiver at risk as well. Like the tension on a piece of elastic, we can handle tension and frustration for a long time; but eventually, something has to give. Cindi Ferrini shares 11 self-care ideas for caregivers.

read more
10 Ways to Strengthen your Marriage as Special Needs Parents

10 Ways to Strengthen your Marriage as Special Needs Parents

Even though our celebration of Valentine’s Day has passed, there are things we can do every day to show we love each other and care for one another. It is a choice, but it takes work. Being a caregiver for our loved ones with special needs can put a lot of pressure on our marriage. Joe and Cindi Ferrini share 10 tips to strengthen your marriage.

read more
How to Respond to Seasons of Waiting

How to Respond to Seasons of Waiting

Have you ever found yourself in a time of waiting? Maybe it was for test results, a health issue, your loved ones’ diagnosis, a job, marriage, or….? During that time of waiting, how did you respond? We do not always understand why we go through challenges and frustrating times of waiting but what we do have control over is our reaction to this waiting period.

read more
8 Tips to Enhance Communication and Autonomy for Individuals with Disabilities

8 Tips to Enhance Communication and Autonomy for Individuals with Disabilities

Assistive communication technology was a big help for our son through school and his past 15-year work experience. Having limited speech until he was 12, our now 41-year-old son has found that sign language and this simple technology have aided him in better expressing himself. Each individual affected by special needs has various and different needs, abilities, and disabilities. By getting creative, you can tailor solutions specifically for your child to help them express their needs.

read more
My Passport to Traveling

My Passport to Traveling

Special needs may put a particular challenge on travel, depending on our child’s needs. While there are places many of us can take our kids, there is the realization that sometimes we might have to say no to a lot of things we wish we could do. For those who can’t travel with your child or loved one with special needs (for whatever reason), I have another idea. The possibilities are endless if you begin to think outside the travel box.

read more
Can We Really Be Refreshed?

Can We Really Be Refreshed?

Hot days, no rain, and my flowers were wilted and exhausted, bent over and looking depleted. I gave every flower a good drink, and soon could see those flowers starting to come back to life. If only a glass of cold water could replenish what we’re lacking….but can we really get refreshed? Here are five ways to get what you need.

read more
Worry? How Do We Not Worry?

Worry? How Do We Not Worry?

While recently listening to an afternoon radio program about “worry,” the woman being interviewed was asked, “I know God says not to worry, but how do we NOT worry?” When we worry, we don’t trust that God can make a way for us. For many of us, we’ve had years to learn this, and are still learning. What’s the key?

read more
Quirks, Perks and Jerks

Quirks, Perks and Jerks

We all have quirks, and even in life with disabilities there are perks. But none of us have to be jerks! Here are some wise words from Cindi Ferrini on how to be Christ-like and honor Him, no matter our circumstances.

read more
When You Recognize Your Child with Disabilities as Someone Special

When You Recognize Your Child with Disabilities as Someone Special

It’s sometimes hard to say that our kids with special needs are someone special, when things drive us crazy with their repetitive verbalizations, when we can’t sleep because they are up all night, when we’re exhausted, and the list goes on and on. But always, always, we get to a point that we see our child/children with the uniqueness of God’s fingerprint on them.

read more
Thanks for That (I Think)

Thanks for That (I Think)

Whether you have typically developing children or children with special needs, there are others who seem to have an answer for why your child is misbehaving, not talking or walking on time, or a myriad of other developmental or behavioral issues. All along the way, we tried to employ a few simple words and thoughts that helped us get through those “suggestions,” that may help you, too.

read more
Interruptions, Privacy, and Time Alone

Interruptions, Privacy, and Time Alone

As a “child forever,” we realize that our adult son isn’t going to consider us in his day to day living. He isn’t going to think, “Oh, Mom and Dad could use a little time together.” To keep from being frustrated, we have found a few things helpful.

read more
Three Ways I Got the Office Staff to Hear Me

Three Ways I Got the Office Staff to Hear Me

The times I’ve had to wait for a doctor I’ve just had to say or do something. Why? Because my time is important, too, and for a child with special needs who can’t sit still, let alone wait for long periods of time, it’s really difficult to expect good behavior. Here are three ways I got doctors’ office staff to hear me, see me and avoid lengthy waits.

read more
Are You Called to Confront or Connect?

Are You Called to Confront or Connect?

Whether it’s with my neighbors, the people with whom I minister; my family, my friends, the people with whom I disagree, or people I just don’t really care for, I realize that I need to be mindful of my directive: to sincerely want and need to CONNECT more than I want to CONFRONT. Here are some quick and easy steps for each of us to consider and when to take action.

read more
Five Things I Did Right – and Wrong! – as a Mom

Five Things I Did Right – and Wrong! – as a Mom

Moms (and probably Dads, too) are constantly analyzing in the rearview mirror of life what we did right and wrong. I have worked very hard at being an intentional and “always there” mom. Due to that very fact, I have had much opportunity in our special needs life to make plenty of mistakes. Here are a few thoughts regarding my parenting that I did right (good) things, and some wrong (not so good) things!

read more
Your Secret or Your Story?

Your Secret or Your Story?

The child was about 12 years old and weighed about that many pounds or a few more. As a young high school aged student, I didn’t know how to relate, respond, or inquire about my friends’ sibling that I was seeing—not meeting—for the first time. I’d known my friend for at least three years, and not once did my friend mention this sibling. It was my first introduction to someone having a family member with special needs.

read more
Five Reasons Why Love Isn’t All You Need

Five Reasons Why Love Isn’t All You Need

We all love our children with special needs, caring for them with all the love we have inside of us. While love is the biggest most important thing we have going for us in this unexpected journey, there are indeed other things needed to get us to the finish line! Here are five that have been important to our family.

read more
How to Know if You Need a Marriage Mentor or Marriage Counselor

How to Know if You Need a Marriage Mentor or Marriage Counselor

Some marriages have moments of disappointment, some have challenges that are discouraging, and some might even be in dangerous and dysfunctional situations that can be devastating. whether you have a loved one with special needs or not, all marriages may show tire marks on the road that give us cause to stop and see what is needed to make the relationship better. Here are lists to help determine if you need marriage mentoring or counseling, and what each can accomplish.

read more
God’s Provision, Even in the Little Things

God’s Provision, Even in the Little Things

When I consider the story of these gloves, I recognize how God really cared about the tiniest of details. I have enjoyed watching how He’s done the same in the life of my son with special needs (as well as his 2 sisters!). Over and over, the Lord has provided in ways that show His care to detail.

read more
The Simple Life of Special Needs

The Simple Life of Special Needs

Folks with special needs often have lives that are simple. I didn’t say easy; I said simple. As Joey’s parents, the simplicity of his life has overflowed into ours, and we’ve learned a lot. Here are a few things that have helped simplify life for us.

read more
Four P’s Experienced by Families with Disabilities

Four P’s Experienced by Families with Disabilities

Over time, some wonderful things have come about that really do help us in this special needs journey. But while helpful, we also look upon some things we’ve experienced with different thoughts. Sometimes we’ve felt like we were pitied. Other times, we look back and are puzzled. Yet most of all, we are pleased! Let’s walk through our list together!

read more
Three Ways to Be a Good Sport as a Special Needs Dad

Three Ways to Be a Good Sport as a Special Needs Dad

Most men enjoy elements of competition in sports, education or career pursuits. And in the case of men who become a dad of a child with special needs, well, they quickly learn that their son or daughter isn’t going to perform, work, think, or be like other children. While we can still make sports analogies, the way it plays out is very different than expected. Instead of being in the sports arena with your child, Dad will be called to be a good sport in life! Here are three ways that God has helped us be good sports.

read more
Learning the Art of Conversation Instead of Monologue

Learning the Art of Conversation Instead of Monologue

Whether we’re talking about our marriage relationship or relationships with friends, acquaintances or someone we’ve just met, I believe we have mastered the art of monologue and have no real idea how to have a genuinely sincere conversation. Here are ideas to help us to learn the “art of conversation” rather than the monotonous monologue we’re used to enduring or offering.

read more
The Most Important Quarantine Question

The Most Important Quarantine Question

Many of us are being asked, “How has social distancing and the quarantine impacted you?” Special needs or not, we all are affected and impacted by this time of quarantine. With that thought, here are a few things to realize together as we all readjust to a new normal of quarantine.

read more
Six Ideas for Building Relationships During Quarantine

Six Ideas for Building Relationships During Quarantine

We are all basically under quarantine until further notice. Life as we’ve known it has come to a screeching halt, and not just for some, but for everyone! You may be used to spinning a lot of plates all at once, and might even have a little anxiety wondering “what to do” with some of this free time. Here are six ideas that will create closer relationships in your family, whether or not you’re in the special needs community.

read more
Affair-Proof Your Marriage

Affair-Proof Your Marriage

We all have times when we feel we’re not heard, loved, noticed, cared for, or appreciated by our spouse. In the world of caring for one with special needs, caregivers are often going, caring, and serving with little rest or reserve for one another. That is dangerous. Here are some things to consider to protect your most important relationship, your marriage.

read more
Embrace the Place

Embrace the Place

During some seasons of our life, we had what seemed to be no free time whatsoever; at other times, we had some. We’ve had seasons when we don’t see the light at the end of the tunnel. But over time, we have purposed to take back the sound track of our life and change some of the noise into music we want to hear. We’ve learned the freedom experienced when we don’t have a lot of plates spinning. What are some things we can do to get to that place? Here are a few thoughts that with a little creativity can help us embrace this place.

read more
The Most Wonderful Time of the Year?

The Most Wonderful Time of the Year?

I hear the music and sway to it with a smile, but do I really feel that way? Do you feel that way? I can honestly say that sometimes the added pressure of buying and wrapping gifts, decorating, sending greetings, baking, and all the rest can be very overwhelming. To help me in this process, I’ve had to put a few things in place that sometimes gets laughs, maybe even ridiculed. Here are a few thing that have helped in my life and for our family.

read more
Encouragement, Mentoring or Counseling?

Encouragement, Mentoring or Counseling?

For those of us who are married for better or worse, we’re in it to win it. That’s the easy part because it’s just saying the words, but in real life, we know that many of us in the world and journey of special needs need real help to make it to the finish line. Those...

read more
Things We Don’t Have to Worry About

Things We Don’t Have to Worry About

Often, when we talk about our children with special needs, we talk about their limitations, challenges, and the things they have accomplished. It’s always a joy to share the victories in the midst of what is often a lot of work, scheduling, and coordinating a lot of people to help make it happen. But as parents of Joey who is 38, we are also very aware that while we have a lot we need to do with and for him, there are also a lot of things we’ve never had to worry about or be concerned about.

read more
The Escape Plan

The Escape Plan

Getting away for coffee or a trip out of town for a weekend for those of us caring for someone with special needs is really a luxury. So, when my (Cindi’s) sister and our two daughters and sons-in-law offered to tag team care for Joey, we booked a trip almost on the spot. We made a plan for our escape! Here’s how we made the trip great for us and for Joey.

read more
Weary and Grateful for Stress

Weary and Grateful for Stress

Most of us on this special needs journey put on a good face in public, but often behind closed doors we are weary, tired, sometimes frustrated, along with other challenging word choices. But we are most thankful and grateful for the stress, because of all we have learned in the midst of it. We realize that if everything went smoothly, if everything was simple and easy, we wouldn’t have any need for or room for God in our lives. We’d go with the flow, enjoy the smooth ride on the river of life, and seldom need to paddle because the ride would be so effortless.

read more
Roll Up Your Sleeves and Get on Your Knees

Roll Up Your Sleeves and Get on Your Knees

As we journeyed through different challenges with our son Joey, one of the dearest things was knowing that others were praying for us. When someone told us they were praying for us, it made our day. Just to know another person or a family had our back in prayer meant the world to us. 

read more
Waving The Surrender Flag

Waving The Surrender Flag

As young parents on this special needs journey, we retired at the end of every day waving our white surrender flag! It wasn’t that we were quitting but we certainly knew we were done and had nothing left at the end of that day. This is where the church can be an invaluable source of help.

read more
Different Trenches, Same Battle

Different Trenches, Same Battle

There is a certain level of comfort and safety in a trench. It’s not really the place you want to be, but you have some safety and comfort knowing you are protected. We have friends that are in trenches right next to us, so we all feel we understand what the other is going through. We see when there is a battle brewing, and sometimes we even hop into each other’s trenches! We know we’re on a level field of challenge, and being together helps us to get through the battle before us. We can’t be in the same trench and work against one another.

read more
Bigger Fish to Fry!

Bigger Fish to Fry!

We need to learn what works for our family, and it’s not always us who can take the reins to start a ministry when our plates are so full with the needs before us. Thus, when a church has a ministry to special needs, the thinking and the work has been taken off our plate. We can embrace the opportunities before us, which lightens our load and helps us in this journey.

read more
Light at the End of the Tunnel

Light at the End of the Tunnel

What’s ahead in 2019? For many of us, what tops the list is caring for ourselves. Likely we’ve gotten really good at caring for others, making decisions we know are good for them, and following through, but sometimes we forget about us.

read more
Home for the Holidays

Home for the Holidays

Spreading ourselves too thin and not being able to relax is a very stressful part of the holidays, so taking a look at events and opportunities before we respond is so very helpful to each of us—host and guest alike!

read more
I Didn’t Think I Could Do This

I Didn’t Think I Could Do This

Thirty-seven years after our son’s birth, we’re so thankful we gained a right perspective to go the distance with him and in our marriage together. We didn’t think we could do it, and that is correct—we needed the Lord and are so thankful He was and continues to be always with us!

read more
I Get to Do THIS!

I Get to Do THIS!

The beauty of this kind of journey of caring and serving is that it is daily. We had daily practice and thus learned little by little what we needed to accomplish a lifetime of care for our son

read more
“I LOVE Your Joey Stories!”

“I LOVE Your Joey Stories!”

We have come to enjoy the deficits, the challenges, the tenderness, and all of the fun victories and joys. Sometimes we have to look for them, but we love getting to share those stories. I hope you’ll take time to look for, embrace, and enjoy sharing yours, too!

read more
Thankful for Helping Hands

Thankful for Helping Hands

During this month of THANKSGIVING we give thanks for and to those who’ve lightened our load, helped Joey grow and become a very wonderful young man, given Joey breaks from us, and us from him, emotionally lifted us up in times of challenge, kept us on all the “right foot” when we want to give up, and well, that list goes on and on, too!

read more
In the Eye of the Storm

In the Eye of the Storm

As we pray for those who’ll be affected by Irma’s winds and water and possible great loss, let’s also pray for those receiving news for the first time of the loss of dreams for their child

read more
Star in the Church Play

Star in the Church Play

It’s not always easy to cast and include those with special needs in other various activities in the church who are nonverbal, noisy, active, and “unable”… but when someone does … they’re the ones who become the real star.

read more
CAREGIVERS: Build Bridges to Others

CAREGIVERS: Build Bridges to Others

Building a bridge is always better than tearing them down. Bridges allow us to journey to a place we long to go! Our journey will be so much sweeter with others at our side, and we at their side. We need to reach out to build that bridge. What might YOU do to make that happen?

read more
Just Say Yes to a Buddy Who Offers!

Just Say Yes to a Buddy Who Offers!

Might we suggest that you take people up on their offers to help?Sometimes we don’t want to “let go” or think we can do it better, but there are those treasures out there who might ask if they can help, and we need to be sure we give them that chance to serve.

read more
I NEED to Be A Better Listener!

I NEED to Be A Better Listener!

In normal every day life, and even more so with our children with special needs who are often hard to understand, we must be totally engaged, fully listening and tuning in to understand what others are saying both verbally and emotionally. Here are a few things I’ve learned along the way:

read more
Oh, to Be THIS Thankful!

Oh, to Be THIS Thankful!

Most of us have so much and aren’t content. He has little and appreciates it all. Lesson learned. Thank you, Joey, for your heart of appreciation, the thankfulness you expressed, and how you are teaching all of us and don’t even know it.

read more