by Jolene Philo | Sep 25, 2023 | Caregiving, Special Needs Parenting, Special needs siblings
Caregivers can do hard things.In the nearly sixty-seven years my mother and I shared on this earth, she taught me many lessons. The one I leaned on the most as our time to say good-bye drew near was this one.Caregivers can do hard things.As a child, I didn’t know...
by Jolene Philo | Sep 26, 2022 | Medically Fragile, Mental Health, Special Needs Parenting
Our pastor was introducing a new sermon series about beauty when these four words, which I had never strung together before, which I did not want to string together, took up residence in my brain. My response was swift and prickly.The beauty of disability? Why would I...
by Key Ministry | Oct 20, 2021 | Down syndrome, Grief, Hope
Guest blogger Tony D’Orazio shares a poignant excerpt from his book, Down Right Joy.My wife Karen’s dad, Ronald Henry Wolf, was born February 1, 1929, at St. Anne’s Hospital, Cleveland, Ohio. He grew up on E. 77th Street in Cleveland. He was the middle child of three,...
by Jolene Philo | Jul 26, 2021 | Caregiving, Grief, Spiritual Growth
What makes me cry as a caregiver is a list that keeps getting longer. On this, the day before my 65th birthday, I’m writing down everything that makes me cry. Think of it as reverse bucket list. A bucket with a hole that leaks tears out my eyes. Do you have the...
by Jolene Philo | Jan 25, 2021 | Coronavirus, Special Needs Parenting, Spiritual Growth
One month ago today, we celebrated Christmas 2020. Those of us who didn’t live through the dark and seemingly endless days of the Great Depression or World War 2 found great comfort in the promises accompanying the birth of our Messiah.The promise of hope.The...
