by Key Ministry | Dec 8, 2021 | Caregiving, Hope, Medically Fragile
“When the Red Sea saw You, O God, its waters looked and trembled! The sea quaked to its very depths… Your road led through the sea, your pathway through the mighty waters—a pathway no one knew was there!” — Psalm 77:16, 19 NLT My husband and I suspected...
by Evana Sandusky | Sep 15, 2021 | Medically Fragile, Special Needs Parenting, Spiritual Growth
A few weeks ago, I watched my oldest nephew marry his best friend. It was a beautiful ceremony that felt surreal at times. It was hard to believe the little toddler that carried the rings in my wedding was now the groom at his own wedding.Family and friends smiled and...
by Jolene Philo | May 24, 2021 | Caregiving, Medically Fragile, Special Needs Parenting
The six caregiving advocacy tips I’m learning all over again come with compliments from my mom. She’s 92 and still teaching me life lessons by the bucketful. She’s experienced some health challenges over the past few months, so we (my older sister, younger brother,...
by Jolene Philo | Apr 26, 2021 | Medically Fragile, Mental Health, Special Needs Parenting
“I can’t.” I sat in my office one morning a few weeks ago and sobbed as my daughter rubbed my back. “I just can’t.”Only one of the vehicles needed for our family of 4 adults and 2 kids was in working order. The washing machine quit....
by Evana Sandusky | Mar 19, 2021 | Down syndrome, Medically Fragile, Special Needs Parenting
Sometimes I forget how old I am. I think I should still be in my twenties, a newlywed who just added to her family.As I lifted my 15-year-old daughter out of the car recently, I was reminded of my actual age. With snow covering the parking lot, Jaycee was afraid to...
by Evana Sandusky | Oct 7, 2020 | Medically Fragile, Mental Health, Special Needs Parenting
Recently, a friend of mine remarked that she was on the struggle bus. She said it jokingly, but I realized that I am way too familiar with that bus. In fact, I think a few of those struggle bus adventures took me much farther than I wanted to go.I am no stranger to...
