by Evana Sandusky | Aug 5, 2020 | Medically Fragile, Special Needs Parenting
There are an overabundance of decisions to make in life right now. For many people I know, school decisions are presently giving parents much to ponder. In addition, parents are making decisions about attendance for events both large and small, going inside of public...
by Evana Sandusky | Jul 1, 2020 | Coronavirus, Medically Fragile, Special Needs Parenting
I walk around the crowded store following the arrows that dictate my path. If people are smiling around me, I cannot tell. The cloth masks we wear to protect against COVID-19 obscure our faces.As soon as it is safe outside, I rip the facial mask off. I take a deep...
by Evana Sandusky | Jun 3, 2020 | Down syndrome, Medically Fragile, Special Needs Parenting
There is nothing like being in a church service. Sure, online church has been wonderful. I have enjoyed the option of hearing from my pastor in my home each week during the pandemic. It has been a blessing to sing along with my family in worship and to take a unique...
by Evana Sandusky | Feb 14, 2020 | Medically Fragile, Rare Diagnosis, Special Needs Parenting
February 14 is the date to celebrate the love in the hearts of two people. It’s also Congenital Heart Defect Awareness Day. According to the Centers for Disease Control and Prevention, congenital heart defects (CHD) occur in roughly 1 in 100 births in the United...
by Jolene Philo | Jan 27, 2020 | Medically Fragile, Special Needs Parenting, Spiritual Growth
20/20 hindsight about our child with special needs was a long time coming. When our son was born in 1982, the doctor said he had a tracheoesophageal fistula TEF, now known as esophageal atresia (EA) or EA/TEF.We were young.We were first time parents.We were expecting...
by Key Ministry | Nov 22, 2019 | Living Life Daily, Medically Fragile, Special Needs Parenting
Each of us go through different seasons in this life. Some are smooth, some are rather bumpy. Others are downright jolting. What’s your first reaction when you hit the bumps along life’s journey? Do you panic? Do you dig deep into your reserves? Do you reach for your...
