by Evana Sandusky | Nov 8, 2019 | Hope, Medically Fragile, Special Needs Parenting
I like having an exit strategy.Whenever we take our daughter with special needs to an activity, our family always discusses the possible scenarios that would cause us to leave abruptly. We develop a plan, so we all know what to do in a tense moment. We act quickly...
by Key Ministry | Oct 25, 2019 | Medically Fragile, Rare Diagnosis, Special Needs Parenting
There’s a weight like no other that exists in the world of medically complex kids. You spend your days—and sometimes nights—advocating, transporting, scheduling, and caregiving for this most precious treasure that you call son or daughter. You learn to be master...
by Evana Sandusky | Oct 2, 2019 | Living Life Daily, Medically Fragile, Special Needs Parenting
I underestimate God. It is a mistake that I make too often.I feel my situations are enormous. The circumstances I face with my daughter with special and medical needs are challenging and scary. The fear and stress feel justified.My daughter gets distressed when her...
by Key Ministry | Sep 20, 2019 | Hope, Medically Fragile, Special Needs Parenting
It’s easy to become overwhelmed when your child’s condition is constantly changing, and it seems that each day brings more medical terminology to google. The things we search for online as caregivers are quite interesting at times. Sometimes all the searching...
by Jolene Philo | Aug 26, 2019 | Medically Fragile, Special Needs Parenting
The transforming power of kindness began whispering to me when I sat across the table from a classmate at our 45th high school reunion. Not the classmate who led me to apologize for my short career as a mean girl in elementary school, but another one. More...
by Evana Sandusky | Aug 19, 2019 | Challenges, Medically Fragile, Special Needs Parenting
When my daughter was born with a genetic condition and a heart defect, my family was overcome with support. We were met with the typical newborn baby gifts and greetings. Then support went above and beyond the norm. We received numerous meals, cards of encouragement,...
