by Kara Dedert | Jul 31, 2019 | Medically Fragile, Special Needs Parenting
The light filtered in through the curtains. Slowly I opened my eyes as the baby monitor crackled and coughed its static-filled morning song. A baby monitor is generally outgrown at age two, but for us, it’s the life-line to our 9-year-old son, Calvin. I could...
by John Fela (Felageller) | May 8, 2019 | Hope, Medically Fragile, Rare Diagnosis
I have always loved the month of April, and for lots of good reasons actually. First off, it is my birthday month, the beginning of spring—or fake spring as we Chicagoans like to say, and the month when two very special holidays usually take place. One is Easter of...
by Key Ministry | Mar 8, 2019 | Grief, Medically Fragile, Special Needs Parenting
This past week, a friend of mine shared a Facebook memory picture of her son. He passed two years ago due to complications of muscular dystrophy. He was in his early 30s but was thirteen years old the last time I saw him and my friend.We were living in Missouri at...
by Evana Sandusky | Oct 24, 2018 | Living Life Daily, Medically Fragile, Special Needs Parenting
I read the title of the message, Let Hope Arise, on the large screen in the front of the church. “Hope, I got this,” I thought.After the speaker began, I realized I didn’t have hope, at least not in every area.I regretfully admit that I felt odd as we repeated the...
by Key Ministry | Aug 1, 2018 | Medically Fragile, Rare Diagnosis, Special Needs Parenting
When people tell me how good I am or how strong I am, it’s hard to take it as a compliment. I am a mother of a child with disabilities. I have no choice. Quite honestly, if I did, I would not choose this. So perhaps that makes me more of a coward than the brave...
by Jolene Philo | Jul 23, 2018 | Challenges, Hope, Medically Fragile, Special Needs Parenting
The Lord was with Joseph.The phrase caught my attention as I read Genesis 39 during my morning devotions.That’s pretty bold, I thought. Joseph’s been sold to slave traders by his brothers, sold again to Potiphar, and the narrator of the story has...
