by Jolene Philo | Jun 25, 2018 | Challenges, Medically Fragile, Special Needs Parenting
June is PTSD Awareness Month—again. If I had my druthers, I’d do the ostrich thing and bury my head in the sand. Because PTSD Awareness Month is hard for me.It brings back memories of the early days of my baby’s life and the medical he endured as doctors...
by Key Ministry | May 30, 2018 | Challenges, Hope, Medically Fragile, Special Needs Parenting
This life of a special needs mom is full of what ifs. Early on with our girlie, the what ifs included“What if she dies?”“What if we can’t care for her?”“What if she ends up in the hospital?”“What if we can’t stop the seizures?”“What if we can’t feed her?” And...
by Key Ministry | May 16, 2018 | Challenges, Medically Fragile, Special Needs Parenting
Every Tuesday night (except for when I have a good excuse not to) I drag myself over to the YMCA for cycle class. It’s not an ideal time, but it’s a rare hour after dinner, and after one kid is in bed, that I can squeeze in a workout thanks to my...
by Stephanie McKeever | Feb 9, 2018 | Challenges, Hope, Medically Fragile, Special Needs Parenting
This Weight. It’s heavy. The weight of special needs was something we’ve gotten used to along the way. It was gradual, never too life threatening. But this. It’s daunting. We long to be at home, away from the hospital, but there is no doubt being...
by Evana Sandusky | Jan 29, 2018 | Church, Medically Fragile, Special Needs Parenting
I grew up in a little church in a small town. It was one of those churches where everyone had “their” seat. If you were missing from church, there was a genuine concern, because you just didn’t skip church.Church attendance was highly valued during my childhood. My...
by Mike George | Jan 12, 2018 | Medically Fragile, Special Needs Parenting
Ben has been on a roll of great days. Nearly 7 straight weeks without a seizure. In our world, a day without a seizure is what we call a great day. No one can explain why he’s been seizure-free during these last two months. A lot of assumptions and maybes are made to...
