by Jolene Philo | Mar 27, 2023 | Caregiving, Medically Fragile, Special Needs Parenting
Editor note: This is part two of a five-part series written by Jolene Philo. Part one can be found here. Part three will publish in April.Empowering kids with disabilities is essential for their present and future well-being. As mentioned in the first post of this...
by Joe and Cindi Ferrini | Mar 20, 2023 | Caregiving, Medically Fragile, Special Needs Parenting
Adjusting to any challenge is difficult, especially when the challenge is physically and emotionally draining. A life-altering diagnosis shifts attention on the problems and issues of the person needing care, and often the caregiver’s needs are overlooked, or at best,...
by Evana Sandusky | Mar 13, 2023 | Down syndrome, Special Needs Parenting
With a simple glance, people may see a typical family when I’m out with my husband and two children. Given a lingering moment, most strangers notice that our family is not like everyone else; something is different.My daughter has Down syndrome, which causes...
by Jolene Philo | Feb 27, 2023 | Caregiving, Special Needs Parenting
This is part one of a five-part series entitled: Empowering Kids with Disabilities. Part two will publish in March 2023. – EditorEmpowering kids with disabilities is important, right? I mean, parenting is about empowering and equipping our kids to self-advocate...
by Evana Sandusky | Feb 8, 2023 | Down syndrome, Medically Fragile, Special Needs Parenting
My daughter’s heart has never been normal. That’s a tough sentence to write, but it’s true.Seventeen years ago, I strolled into the NICU for my mid-day visit with my daughter, Jaycee. She was in the middle of her first echocardiogram to examine her heart. I sat...
by Jenn Soehnlin | Jan 30, 2023 | Mental Health, Special Needs Parenting, Spiritual Growth
When my kids were about two and four, I joined a MOPs (Mothers of Preschoolers) group. I was excited to have childcare provided, a break from all the therapies, and to have adult conversations with other moms.At the beginning of the first meeting, we were supposed to...
